Cancer Research UK main site

GIST - has anyone else had this?

Waterbloem
Offline

Hello, I am an octogenarian and I  have an 8cm lesion in my abdomen. Investigations so far cannot quite determine what it is, but an MDT consensus is that it is a gastro intestinal stromal tumour.. It seems to be anterior to the spleen.

It is asymptomatic, but is an incidental discovery through colon investigations. I wonder if anyone else has this rare type of tumour? 

  • Hello Waterbloem

    I'm sorry to hear that you've recently been told that you likely have a GIST tumour. It's understandable that you may have questions and concerns about this news. 

    We have some information on our website about GIST that you may find helpful. 

    I can't see that we currently have any other active members who have this rare type of tumour, but you can read through previous posts by using the forum search function at the top of the page to look for the term GIST. 

    If you think it would help to chat things through with one of our nurses for some advice and support, you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any information and help they can. 

    Do let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.