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ER positive/HER negative breast cancer, struggling to decide whether to take Tamoxifen or not!

T444MYJ
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Hello, 

I am 2 weeks post single mastectomy, recovering very well and had the best news that the cancer has not spread and I do not need chemo or radiotherapy. I feel incredibly grateful  

I have been recommended to try Tamoxifen but really swaying towards not taking it. I struggle to find any real research that shows the actual benefit or success rate and I was told it’s likey 1 in 100 chance of helping by my consultant. 

I am really fortune that I managed to work out right up to my surgery and have recovered very quickly so feel that taking something that would now make me start to potentially feel ill doesn’t sit right with me. 

I have thought about trying it to see if I get the obvious side affects but I more worry about the silent side affects that you won’t know about until it’s too late.

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    • Hi , there is a Predict tool that you and your consultant can use . I find it odd that your Consultant has only given you those odds of it helping . Please check again . The reasons that I say this is twofold . You are probably pre menopausal if they’ve offered you Tamoxifen . I was diagnosed 19 years ago with hormone receptor positive breast cancer . As I was low risk , grade 1 , it wasn’t deemed necessary to put me on an aromatise inhibitor ( they would have offered it now ) fast forward 19 years and the cancer is back in the same breast . It’s your choice of course but please research it x  
  • Offline in reply to LCR

     Sorry to hear your cancer has come back. I have done lots of research and there is no conclusive answer to how successful taking it will be. There are women who take it and it comes back and those it doesn’t, guess it’s the same as why we get it in the first place, there is no real reason. 

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  • Offline in reply to LCR

     Sorry to hear your cancer has come back. I have done lots of research and there is no conclusive answer to how successful taking it will be. There are women who take it and it comes back and those it doesn’t, guess it’s the same as why we get it in the first place, there is no real reason. 

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