We have detailed information on our website on this rare type of vulval cancer, vulval melanoma. I hope that you will hear from the experiences of others on the forum who have been diagnosed with vulval melanoma. I have just had a little look for you and I have found for example hi102 's vulva melanoma thread - this member posted a year ago about her vulval melanoma diagnosis. I hope that you will hear from others here who have had a similar diagnosis and that you will learn from one another's stories and experiences.
Our cancer nurses are also always here to talk if you would like to talk things through with them or ask any questions about vulval melanoma. You can call the helpline on this free number 0808 800 4040 Monday to Friday from 9am to 5pm (but it will be closed this bank holiday Monday)
Hi Kkr, I am sorry you are joining this select group of Vulva Melanoma sufferers. I was diagnosed a couple of years ago now when I was 79 years of age, I am now just 81 and still plodding along. I cannot really tell you anything other than what you already know, because of my age and family circumstances I chose not to have treatment, I had the biopsy and then the diagnosis and then came a round of mri. ct and pet scans. I saw the surgeon who frightened the life out of me by explaining what was going to happen and the bits they were going to remove so I decided enough was enough and called a halt on it all. Since then I have tried to take care of myself only seeing my surgery's oncology nurse once because I have some pain in what she called my loin. She prescribed pain relief which I take twice a day so my life goes on. I did not ask how long I would have but at 81 I think old age will get me first. It does frighten me at times when I think about what might happen to me later so I try not to think about it. I hope all goes well for you in the future. xx
Thankyou dor replying to me I'm only 38 and a mum to 4 so I have no real choice but to have the surgery which I'm terrified of I'm sorry u have had to deal with this I truly understand what uve been through I wish u well for the future you sound like a brave lady
Far too young to be going through this and of course you have to fight through this for yourself and your family. I am not a brave lady just very scared with no-one to care or look after me. If my husband was still with me it may have been another matter but I comfort myself with the thought he went ahead of me to build a better forever home for both of us. Good luck with your future, I am sure it will all be well . xx
