Daughter refusing final chemo

Hi

The week before Christmas last year, my daughter who was 29 at the time received a diagnosis of Stage 4 Hodgkin's Lymphoma.

She was told she would need 6 rounds of ABVD and this started almost straight away - she was so very poorly by this stage. After 2 rounds of treatment, she had another PET scan that showed the cancer was responding well to treatment but the consultant decided to change her onto BEACOPP escalated to make sure that all the cancer went and said she would have 4 rounds of the new regime.

The first lot was brutal but we had no idea just how ill the new chemo would be. Treatment for 3 days running, followed by going back on day 8 for another session, followed by daily injections not to mention all the tablets (which I now now is usual) but the point is that after 3 rounds of the new chemo, the Dr wants her to have a PET scan followed by a final round.

Her outlook on life is bleak and she is insisting that she will not have the final round because if the scan shows up as all clear, why should she go through more pain? I have explained that the final round is to make sure it has all gone but her counter-argument is that if it hasn't gone she will need more treatment and if it has gone what's the need for more?

Basically what she is saying is that after this round (3), she is done, no more, had enough - which I do understand - she spent both New Year's eve and her 30th having treatment and she is incredibly sad and also experiencing menopause symptoms.

I feel helpless and  guess I am just reaching out to see if anyone else has been in this position and how did they cope with it?

  • A very warm welcome to the forum Mumma-bear although I'm sorry to hear about your daughter and all that she has been through.

    It sounds like it has been very tough so like you say, it's completely understandable why she's doesn't want to go ahead with the last round of chemo but maybe with some time to think about things she may change her mind.

    Has your daughter been able to connect with others who also have this diagnosis? It may help if she could talk to others who know what she's going through, especially if her outlook on life is very negative at the moment, so if she hasn't had the chance to do so maybe you could make her aware of the cancer charities such as Lymphoma ActionBlood Cancer UK and Maggie's that she can get in touch with and the support they can offer to people with Hodgkin Lymphoma.

    It must be very difficult to be in this position Mumma-bear, but I'm glad you've reached out to us as so many of our members will have experienced this when supporting their loved ones on their cancer journeys, so you are not alone, and hopefully you will receive some support and advice from the community soon.

    If it would help to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very understanding and will do all they can to address your concerns and help you find ways to cope with what's going on.

    We're sending you all our support Mumma-bear and wishing your daughter all the best with her PET scan. We'll have our fingers crossed the results bring good news when they come through.

    Kind regards,

    Steph, Cancer Chat Moderator