Hello watching-the-birds and welcome to the Cancer Chat community.

I'm sorry to hear how difficult your treatment has been and you're now thinking about stopping the Paclitaxel.

This must be a very difficult decision to make, but you do have to put yourself first and decide how much you can cope with. Hopefully some of our members who have had similar issues will share their thoughts and advice with you soon, but do talk things through with your medical team as well (if you haven't done so already) as they'll be in the best position to advise. If it's possible, maybe you could see if the strength of the Paclitaxel could be reduced so it's more manageable for you.

If you can't get in touch with your team just yet, you can discuss this further with one of our cancer nurses on 0808 800 4040. Their helpline is open Monday - Friday between 9a.m - 5p.m and they will do all they can to answer your questions and support you whilst you figure out what to do.

We're sending you all our support watching-the-birds and wishing you well with the rest of your treatment.

Kind regards,

Steph, Cancer Chat Moderator

Hi Watching The Birds.  Sorry to hear you are also on this horrible journey.  My diagnosis was similar to yours but Grade 2 and  had 3 FEC and originally prescribed 12 Taxols 14 years ago but in the end could only have 10 as made me too poorly.  I stuck it out for as long as I could as wanted to throw everything at the cancer. This was followed by 25 radiotherapy sessions and 10 years on Arimidex aromatose inhibitor.  All of this treatment affected the joints and fatigue etc but looking back although tough glad I persevered.  I have had 13 plus years  of being cancer but unfortunately it has returned on my spine so now have bine nets in r ribs, , hip and pelvis.  Going through target therapy at the moment and coping well and also taking Letrozole which does cause some joint paint but I expected this. Also on Denosamub  for bones and this causes fatigue but following radiotherapy on the main tumour on spine which I have badly reacted to with all the nerves being affected had had to go in steroids hence awake at this early hour!   I remember spending many nights awake with previous treatment but we have to do it.  

keep persevering with the treatment if you can I can remember hardly being able to put my feet to floor when getting out bed previously and it is hard.  But bit like giving birth you do forget!!!

 Although a lot of the symptoms are now becoming very familiar again with current treatment.  I have a great Oncilogust who actually treated me last time and keeps reminding me that treatment has moved on so far and so much more availability for us so we need to be positive!  There is helpout there with different options so keeping toes crossed with my bone nets which is treatable but not curabe.

I am only 64 with a new granddaughter and hoping to watch her grow!!!   All the best with your treatment and happy to chat.