Daisy - struggling with my breast cancer diagnosis

Struggling with recent breast cancer diagnosis.

in six short weeks I have been diagnosed with grade 1 IDC in both breasts . Had double mastectomy with implant reconstruction. Pathology from operation showed 1 small lump in left breast and 2 in right with microscopic cells in 2 lymph nodes on right side .

today I have been called for a CT scan and I’m terrified it’s because they think it has spread . I have back and hip pain and every twinge I feel I think is cancer .

I’m struggling so much and can’t really talk to anyone about how I feel . Every appointment seems to throw another curved ball . I would love some positive experiences from others who have faced this journey 

thank you  

  • Hi Slr3,

    A very warm welcome to our forum.

    I am sorry to hear that you have already been through so much and understand your anxiety. Waiting for a full diagnosis is possibly the most worrying time of your entire cancer journey. There are still so many unknowns and your over active imagination tends to go into overdrive. You will feel better once you know exactly what you are dealing with and start to treat it. I hope that you are recovering well from your surgery.

    I have had 2 bouts of breast cancer within a year. First time around, I had a lumpectomy, then I had a double mastectomy for the second bout. Like you, I had Stage 1, but had to have a number of additional tests, including a CT and MRI to confirm my diagnosis. It is disappointing to have further delay following your surgery, but you are best to get the full story from the outset. It is now 15 years since my surgery and I still lead a busy and fulfilling life. With your cancer, being grade 1, it sounds as if you have caught it early and it should be very treatable.

    Most people imagine all sorts of aches and pains following a diagnosis. Most tend to be caused by the stress and uncertainty of diagnosis and usually settle down once treatment starts. 

    I hope that your CT goes well today and that you'll soon know the results. Please keep in contact and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx