Hi everyone, I'm 42f and hoping for a miracle as I'm sure many of us are! I'm sorry if this is a bit long winded but I'm hoping someone has had a similar experience to me and can offer some advice or any recommendations at all.
I was originally diagnosed with 1b cervical cancer in Oct 21, I had a couple of lletz procedures and then had a radical hysterectomy in Feb 22. I made a good recovery from that and life went on. I wasn't offered any further treatment at that point.
Then at the beginning of last year, I started feeling bloated and uncomfortable. My symptoms worsened and I thought I had flu or a bug because I was struggling to breathe, I kept going for a little while not thinking for a moment it was related to my cancer until I ended up in a&e. I was diagnosed with ascites and very quickly told it was likely the cancer had metastasized. This was a year ago this week. I was diagnosed with metastatic mucinous adenocarcinoma.
I started chemotherapy and immunotherapy last June (paclitaxel, carboplatin and bevacizumab) with palliative intent. Things have been going well, the chemo got rid of the ascites and I've had a slight reduction every time. I had 6 rounds of the chemo and I'm currently on on number 13 of the bevacizumab with a CT scan every 3 months, the latest being a couple of days ago so I don't have those results yet. I am feeling well, I have some pain but that is manageable with paracetamol and codeine. Unfortunately I am not allowed to work (I think it's an insurance thing tbh) but I can still get to the gym and carry on with everyday life and luckily I have never had too many side effects.
Currently the cancer is in my omentum, vaginal vault, retroperitoneal lymphadenopathy and liver (I think that's right but sometimes the details are a bit overwhelming and I don't always get everything right).
Has anyone here experienced anything similar? Has anyone found any consultants in the UK or abroad that can offer any other treatments that could be worth looking into? I know this is a UK forum but I'm still hoping I can find someone, anywhere, who can offer me something other than palliative. I refuse to believe I can't beat this again.
I'm sorry if this is a bit too long winded, I've never had the ability to write a consise message so thank you so much if you got to the end ️
Ems x