Hi everyone, this is my first post. Im just introducing myself so i hope I dont bore you all.
2 years ago I had surgery to successfully remove a NET tumour from my pancreas. I lost half my pancreas and all my spleen. I felt great for a year but then a follow up scan showed half a dozen Nets in my liver, most tiny and a 1cm one.
It took a worryingly long time to get a treatment plan but I started on Lanreotide last December. The first month had no noticeable side effects, January had bad nausea but only for a few days, but February was awful. I had a variety of things like blurry eyes, bloat, prickly pains and shattering fatigue. I tried to get in touch by phone, no luck, but when I went fir my March jab the nurses were amazing and explained that everything I was getting was side effects which often happen in the early days of treatment but can calm down. So I felt calmer and able to cope knowing that it was probably not disease progression. Sorry I'm going on.
Anyway here I am, carrying on, most side effects gone except for fatigue and a little bloat(not severe at all). I have been given Crean but wonder if I really need it and will it be another drug in my body and once I start it will I need to use it forever? My diarrhea is not happening now. I got Crean yesterday but don't know if I should start it? Any ideas?
Thanks fir reading - I will ve briefer in future.