I'm sorry to hear you were diagnosed with Leiomyosarcoma back in 2020 Hunbun and that an x-ray last year showed that it has spread to your lungs and jaw.

Living with a rare cancer can be very tough but we are here for you Hunbun and hopefully some of our members who have Leiomyosarcoma or a similar diagnosis will be along soon to offer their support and advice.

If you have any other questions about your diagnosis, or would just like to talk things through with someone, you're very welcome to give our cancer nurses a call on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they will do all they can to support you.

I'm not sure from your post if you have heard of the bone and soft tissue cancer charity Sarcoma UK but they have a lot of information about Leiomyosarcoma on their website and will be able to connect you with others who have this diagnosis as well.

I hope this helps and that being a part of our community will help you feel less alone on this journey.

Kind regards,

Steph, Cancer Chat Moderator