Hi everyone,

like many here, my journey has been anything but straightforward. It started with missed opportunities—symptoms that should have raised red flags but were overlooked, leading to a delayed diagnosis of high-grade papillary urothelial carcinoma. By the time it was found, the cancer had already taken my kidney.

Surgery was meant to be the turning point, but instead, it marked the beginning of a different battle. Persistent pain, complications, and a slow, grueling recovery followed. Adhesions, obstruction risks, and further surgery have shaped my reality, alongside the mental and emotional weight of navigating life after cancer. While ive had the support of some incredible medical professionals, ive ve also had to fight to be heard, to get the care I need, and to hold onto my ability to provide for my family despite my body working against me.

Right now, Im struggling. The pain is worsening, my body is exhausted, and I feel like I have less to give with each passing day. I know Im not alone in that, and I know others here will understand what its like to feel trapped in a body that just wont cooperate. Im here to share, to learn, and to connect with people who truly get it. If my experience can help even one person push for answers or feel less alone, then thats something worthwhile.

Looking forward to getting to know you all.