Wife recently diagnosed with endometrial cancer - waiting for response from medical team meeting. Scared.

Hi all

My wife went for a check up after spotting and after an examination was told she had a polyp that needed removing. This was done and a follow up appointment for another procedure scheduled for Valentines day. We went along, and instead of the procedure, the doctor instead told her she had endometrial cancer and that it was nearly 100% she would need a full and complete hysterectomy. She is 48 and has already been told the chances of conceiving were slim due to polycystic ovaries (I think that's the right term).  Naturally she was shocked by this news, not what either of us had been expecting. Despite him saying this looked like "the best kind of cancer", she then was fast tracked with an ultrasound on Monday 17th, with a CT scan on Saturday 22nd. We were told the medical team would then meet Monday 24th to discuss and we would hear shortly after.

It's a very scary time right now - being told "good kind" but then the fast track with follow on procedures is not filling either of us with hope. We're now in the limbo of waiting to hear what comes next. I've informed my work that changes to my schedule will need to happen when she is in recovery and they have been fantastic. She is coping really well with all this - she has a strong sense of humour and courage but I've noticed a change in her patience levels which is completely understandable, and I'm doing my best to be positive and just be there for whatever she needs - usually just a sounding board.

I'm not sure exactly what I expect from this forum, but needed to do something. My "need to fix this" is dialled up to 11 which I'm trying to rein in. I work from home and have been basically doing the bare minimum since last Friday - not my biggest concern right now - and that's about it for now.

Thanks for reading.

  • Hello Wordweaver

    I'm sorry to hear about your wife's recent diagnosis of endometrial cancer. It's understandable that this is a difficult time for you both as you wait for news from the MDT. It's good to hear that all the necessary scans have already been done and hopefully, if you've not already heard from the specialists then they will be in touch soon to discuss the results and a treatment plan. 

    This period of waiting and uncertainty is undoubtedly one of the most difficult times for many people. It's good to hear that your wife has been coping well with a strong sense of humour. It's also understandable that she is perhaps also struggling with her usual levels of patience - there is a lot to take in and process at the moment but I'm sure she appreciates the love and support you've been able to offer. 

    If either of you would like to talk with one of our nurses at any point you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope that the specialists are able to give you both some reassurance soon. Keep in touch Wordweaver and let us know how you're both getting on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you for the kind words Jenn.

    The MDT call came yesterday to say that an MRI now needs to be done to determine the extent of the confirmed cancer, plus the CT scan showed a shadow on her right breast and an appointment has been scheduled for the 17th to have this examined. Should get the MRI appointment soon, so things are moving quite quickly.

    We'd expected that news but it still comes as a shock.

  • Hi I had a full hysterectomy for pre cancer and we were in the middle of an ivf cycle,so I can understand how shocked you both must feel..... 

    Hope your wife can get all this sorted very quickly and get well again    

    I'm currently waiting on biopsy result on 2 neck tumours - 5 weeks now,lots of uncertainties at the minute of the best route forward from options discussed...

    But I do think we're all in the best hands and I wish your wife and you all the very best going forward,please let us know how things proceed..

    Hugs