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Hi, just seen your post, my 'sista' [ 45 years of friendship] was diagnosed with Myeloma in Oct 2023. I have found the Myeloma UK site very informative and helpful. I belong to the 'friends and family ' group...the initial diagnosis was overwhelming [ as I'm sure you and your family agree] as time has gone on and with the support [ for my sista] of a Specialist Nurse, life has settled into a 'new' normal ... I am 500 miles from her and unable to travel due to my own health issues, so feel helpless and hopeless so much of the time.. take good care of yourself..Myeloma UK Offer great advice and events.. my sis went to a seminar last year which she found very helpful and informative, she also met 2 women who she keeps in contact with..it can be helpful to have someone who understands from a personal perspective...
Hi Bongoonn.. thanku for your reply, my sista decided against stem cell and has recently stopped most of her meds.. a difficult and very personal decision..
I am sorry to hear you are going through treatment again, I can only begin to imagine the impact on you and your family ...
Hiya, he had back pain and was sent to physio. She referred him on. He had an MRI. This was all private. He was then admitted as an emergency at NHS hospital as they suspected spinal compression. He was diagnosed after 3 weeks in hospital, it's in his spine and ribs. Can barely move. Second chemo starting today. They always seem to think it's sciatica!
Morning all.. following with interest as my sista was diagnosed on a routine blood test by GP. No symptoms, made an appointment to discuss HRT and was recalled for repeat bloods, diagnosed within days, quickly accelerated to bone marrow biopsy/CT/MRI/xrays and Oncologist... a shock to us all..to say the least .. the past 18 months have been a rollercoaster.. my sista is stoic and positive .. on a personal and selfish view, being 500 miles away and unable to travel is ....
