Hello, my 25 yr old daughter was diagnosed last month with a pheochromocytoma, following some routine tests for blood pressure by a trainee GP who thought "zebra" when she heard hoofbeats. Unfortunately our doctors have advised at an early stage surgery was not viable and that chemotherapy or any other kind of therapy / treatment is futile. As a family we are reeling. I am trying to understand as much as possible about this rare diagnosis about a tumour which is also behaving unusually. If anyone can point to useful research being carried out in the UK (or even Scotland specifically) or groups supporting those in this position I'd appreciate it immensely. I've been told there is literally nothing now but symptom treatment and pain management. It seems incredible to me that there is no viable treatment for this devastating albeit rare cancer.