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New to small bowel NET

Sketchyman
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Hello,

I was diagnosed by accident, after thirteen years of painful stomach attacks - yes that's 13 years.

During that time, I have been seen by six different consultant gastroenterologists, five separate GPs and have undergone countless blood test, endoscopies, colonoscopies and loads of other scans and tests, Now I know for sure that I have small bowel NETs and face an operation around Easter time to (hopefully) deal with the problem.

I wonder if there is any kind soul in the forum who has undergone anything similar and who might offer some useful words of encouragement -which I certainly need at the moment.

Many Thanks in Advance

Sketchyman

Parents
  • Online

    Hi Sketchyman, 

    Wow, 13 years of painful stomach attacks before being diagnosed - that was a long time to have to wait but I am glad you finally got a diagnosis. You will find information on our website on small bowel neuroendocrine tumours which I hope you will find useful and you will find out more about the surgery on our page about treatment for small bowel neuroendocrine tumours . I hope that the operation will be a success and will deal with this effectively. 

    If you wanted to talk things through with our cancer nurses at any point, feel free to get in touch with them on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

    I hope that you will hear from other members of our community who have been diagnosed with a small bowel NET and that they will be along shortly to share their experience with you and that they will have words of support and encouragement.

    All the very best for the surgery - I hope it goes smoothly and that you recover quickly from it.

    Best wishes, 

    Lucie, Cancer Chat Moderator

Reply
  • Online

    Hi Sketchyman, 

    Wow, 13 years of painful stomach attacks before being diagnosed - that was a long time to have to wait but I am glad you finally got a diagnosis. You will find information on our website on small bowel neuroendocrine tumours which I hope you will find useful and you will find out more about the surgery on our page about treatment for small bowel neuroendocrine tumours . I hope that the operation will be a success and will deal with this effectively. 

    If you wanted to talk things through with our cancer nurses at any point, feel free to get in touch with them on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

    I hope that you will hear from other members of our community who have been diagnosed with a small bowel NET and that they will be along shortly to share their experience with you and that they will have words of support and encouragement.

    All the very best for the surgery - I hope it goes smoothly and that you recover quickly from it.

    Best wishes, 

    Lucie, Cancer Chat Moderator

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