Hello Toby

I'm sorry to hear that you've recently been through surgery for lung carcenoid. It's good to hear that you're now back home recovering and I hope you are being well supported by family and friends. 

Two weeks is a very short space of time in the recovery process and it's to be expected that you will still be dealing with some fatigue and breathlessness as you continue to recover. We have some information on our website about problems after lung cancer surgery that you may find helpful. 

Do talk with your specialist cancer nurse about your concerns as they will be able to best guide and support you. If they feel that you need additional support from a physiotherapist for example they will also be able to arrange that. 

In the meantime, be gentle with yourself and try not to worry too much. I hope that things continue to improve for you over the coming weeks and months. 

Best wishes, 
Jenn
Cancer Chat moderator 

Hello toby, 

just wondering how you are getting along after your operation I am due to go in for the same thing so eager to see how the pain is now.

Tracey x

Hi Tracey - sorry  to hear your news. I had my op back in January and have to say recovery was easier than I thought it was going to be. Within a week of being home I was walking my dog (not far but it was a start) and after a month, I was walking 2-3 miles everyday. Unfortunately, it turned out that my tumour was worse than they thought and so am currently going through chemo as well which, although unpleasant, again is not as bad as you might think.The pain wasn't too bad although I was taking strong pain killers but only for 2 weeks - then just took ibuprofen when needed... Stay strong - you've got this. Tx

Hi there - sorry to hear your news. My honest advice is that it is not as bad as you think. I was up and about within a week or so and continue to recover although am currently going through chemo which, although not nice, again is not as bad as you think. The excercises do work and, within a month, started feeling normal again. I still get tierd more easily but you just adapt. Really good luck - you've got this. Stay strong and remember - the human body is incredible!

T

Thanks Toby,

You sound very upbeat, and that’s what I need right now. It’s so easy to get in a funk about things. Waiting is the hardest. I was supposed to do the initial scan in December but everything got delayed. Fast track to today, and I’m waiting for a date for the biopsy.

Hopefully I can find a Physio to get me in shape before the op. It’s so hard to get a slot these days. They want me to see a dermatologist as well as I have Viking phototype (red hair, white skin). Almost impossible to see someone before September/October.

Give your dog a cuddle for me. My old Labrador had to be put down last year and I do miss my dog.

Hi toby

thank you for getting back to me so quick, I am in hospital right now came in at dinnertime I have my op on Tuesday but my surgeon wanted some last minute tests so I have been very nervous today, thank you for putting me at ease with the pain it’s that I seem to be more scared of. I am so very sorry to hear your journey continues but fingers crossed it all comes good for you and like you say the human body really is an amazing machine.

I will keep you in my prayers, you also stay strong you seem to have a very good mindset because I have found that when you have a little wobble that seems to do more harm than good, we’re in this together we can do it.

Tracey x