pneumonectomy recovery

Hello - I'm Toby, 52 years old, had a pneumonectomy 2 weeks ago on my right lung following a disgnosis of a carcenoid (very large). I am back at home now recovering but am struggling and wanted to reach out to anyome else how is or has been in my sistuation to discuss the recovery process. Very short of breath currently (have only just started excersising).

Cheers

T 

Parents
  • Hi Toby, I may have to have similar surgery and was wondering how you are feeling now (4 months post-op). Did you do exercises before as well? I have been told to see a Physio to build up lung strength prior, but honestly, I feel like a rabbit in the headlights. Not sure if surgery is the way to go, hoping against hope that there might be another way around this (my lesion is 2cm, so not that big). Hoping that you are out of the woods and well on the way to full recovery. All the best ...

Reply
  • Hi Toby, I may have to have similar surgery and was wondering how you are feeling now (4 months post-op). Did you do exercises before as well? I have been told to see a Physio to build up lung strength prior, but honestly, I feel like a rabbit in the headlights. Not sure if surgery is the way to go, hoping against hope that there might be another way around this (my lesion is 2cm, so not that big). Hoping that you are out of the woods and well on the way to full recovery. All the best ...

Children
  • Hi there - sorry to hear your news. My honest advice is that it is not as bad as you think. I was up and about within a week or so and continue to recover although am currently going through chemo which, although not nice, again is not as bad as you think. The excercises do work and, within a month, started feeling normal again. I still get tierd more easily but you just adapt. Really good luck - you've got this. Stay strong and remember - the human body is incredible!

    T

  • Thanks Toby,

    You sound very upbeat, and that’s what I need right now. It’s so easy to get in a funk about things. Waiting is the hardest. I was supposed to do the initial scan in December but everything got delayed. Fast track to today, and I’m waiting for a date for the biopsy.

    Hopefully I can find a Physio to get me in shape before the op. It’s so hard to get a slot these days. They want me to see a dermatologist as well as I have Viking phototype (red hair, white skin). Almost impossible to see someone before September/October.

    Give your dog a cuddle for me. My old Labrador had to be put down last year and I do miss my dog.