Hey Gebbie, 

I noticed no-one has replied to you just yet so I wanted to quickly stop by to reassure you that your post has been seen.

My reply will also allow our members to see your post again, so hopefully those who know how difficult it can be to live with a rare cancer, or can offer some tips and advice on managing fatigue and joint pain, will stop by soon to share their experiences with you.

You're very welcome to discuss this with our team of cancer nurses as well. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m and they'll do all they can to address your queries and concerns. 

Keep living life to the fullest Gebbie, and remember that we will always be here for you.

Kind regards,

Steph, Cancer Chat Moderator