Tumour removed told LAMN low grade

Good afternoon, I received a diagnosis today of a low grade rare cancer LAMN. 
I went into hospital with what was thought to be appendicitis, when they did a CT they explained it was complex and they would need to operate that night.  They felt they had succeeded in removing all of the tumour Draining a cyst and removing my appendix’s. 
I am now awaiting a report from a specialist team in Basingstoke.. Before they decide what the next move is..

It has come as a shock with the words rare cancer, having lost both parents and grandparents to cancer. But I aim to stay positive and focused as I believe it is important. 

That doesn’t mean to say I don’t need support, and a safe place to air my concerns 

Thank you for taking the time to read this