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Tumour removed told LAMN low grade

Simonite
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Good afternoon, I received a diagnosis today of a low grade rare cancer LAMN. 
I went into hospital with what was thought to be appendicitis, when they did a CT they explained it was complex and they would need to operate that night.  They felt they had succeeded in removing all of the tumour Draining a cyst and removing my appendix’s. 
I am now awaiting a report from a specialist team.. Before they decide what the next move is..

It has come as a shock with the words rare cancer, having lost both parents and grandparents to cancer. But I aim to stay positive and focused as I believe it is important. 

That doesn’t mean to say I don’t need support, and a safe place to air my concerns 

Thank you for taking the time to read this

  • Welcome to the Cancer Chat community Simonite although I'm sorry to hear you've been diagnosed with the low grade rare cancer LAMN.

    As you say, finding out you have cancer, and a rare one at that, can come as quite a shock but our members are here for you Simonite and hopefully it won't be long until some of them stop by to offer their support and advice. 

    We have some information on coping with cancer and your type of cancer, pseudomyxoma peritonei, on our website but if there is anything else you'd like to discuss with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to answer your questions and put your mind at ease about what happens next.

    The waiting is always tough, but we are sending you all our support Simonite and hope you hear back from the specialist team soon.

    Kind regards,

    Steph, Cancer Chat Moderator

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    Hi Simonite,

    I'm sorry to hear of your diagnosis. I too was diagnosed with a rare cancer, pseudomyxoma peritonei, about 14 months ago. This came as a huge shock. I had a major operation last March and I am awaiting an appointment for my first annual check up next month.  I fully understand how worried you must be but you are right to stay positive.  That's how I've got through the past year.  I hope you hear from the specialist team soon. Wishing you lots of luck x

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