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Gist diagnosis

gray70
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Hi all, 

I would just like to introduce my self, I'm a 54 year old male and have recently (Sept 24) been diagnosed with gist, It is around my duodenum and spread to my liver. I'm currently on Imitinab and now waiting on the results of my first 3 month scan.

If anyone who is in a similar situation, please feel free to reach out, I think it would be beneficial to share each others journeys through this. Take care.

  • Hi gray70,

    Welcome to Cancer Chat. I hope you are getting on OK and that this forum can be of some help to you.

    My reply here will give your post a little boost, so a few more people should see it and hopefully you'll get some replies from others on the forum, particularly if others with similar experience see your post.

    You can also browse or search the forum (using the bar at the top of the page) for other relevant discussions and people to connect with, if you'd like to.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Offline in reply to Moderator Ben

    Hi

    My husband has been diagnosed with stage 4 GIST. He has an appointment with an oncologist next week and we are really hoping he can get started on medication. In the past 3 days he has gone downhill, having a lot of pain & barely eating. I’m so worried he won’t be able to have the medication. I would welcome advice from anyone going through this

  • Offline in reply to JulieForest

    Hi Julie, that sounds exactly like myself 7 months ago.(M.54)  Once I got over the I inital shock things began to change. My team soon sorted out a plan for my pain ( which worked)  and my appetite came slowly back. I have stage 4 GIST duodenum and liver and currently on Imitinab since October. I have been for an oncology meeting today and had wonderful news that results from last PET and MRI scan than I have no active cancer cells, whilst my duodenum tumour has halved in size to 2.8cm fro 5.6 and originally I had 7 lesions on my liver, 2 have completely gone and the other 5 have dramatically reduced in size ranging from 16mm to 8 mm. I hope that my success can raise a hope for you. Please feel free to reach out anytime if you need to chat. Take care.

  • Offline in reply to gray70

    Thank you so much for taking the time to reply. It’s great news that things are looking positive for you and will hopefully continue. It gives me hope for the future.

    Take care 

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