Hello NLP123, 

Well done for chasing those results when you had heard nothing but I am so sorry about your triple negative breast cancer diagnosis  just 15 months after your little sister passed away. I can imagine this was rather traumatic for you and it's so unfortunate that you got the same diagnosis. It won't be long now until you have your first oncology appointment and hopefully you will get a bit more clarity when you have seen the specialist and reassurance as to what your treatment plan might be. It's the not knowing that is really difficult sometimes. 

It's not surprising that your head is all over the place - you have been through so much in recent months but it's good news that the CT scan revealed that it hasn't spread. You are not alone here and if you type the keywords 'triple negative breast cancer' in our forum search, you will see quite a few recent posts from members who have been diagnosed with triple negative breast cancer and feel free to respond to any thread you feel would be relevant to you. Just to give you one example, Confidetialor123 posted this thread just a few days ago mentioning they were also diagnosed with triple negative breast cancer in November. I've also made sure to add the words 'triple negative breast cancer' to the title of your thread so that it can be spotted more easily by others who have had the same diagnosis and I hope that you will soon be hearing from others who have had a similar experience. 

We also have a team of cancer nurses on hand if at any point you'd like to speak to them. You can call them on freephone 0808 800 4040 and lines are open 9am to 5pm Monday to Friday. 

Best wishes, 

Lucie, Cancer Chat Moderator

Hi NLP123

I’m sorry to read your post and what you have been through. How did the treatment plan go? The waiting for treatment is incredibly difficult and it contributes massively to anxiety when you know what how serious this type of cancer is. I’m sorry about your sister, I can’t even imagine :( 

I am 39 and diagnosed with triple negative also, grade 3. This is the year I have to fight for my life. I have an 11 year old son so I will fight hard. My tumour has doubled in size in 5 weeks and is 6cms now. I start chemo in a week. 

Were you started off on chemo? I hope you are managing ok x

Hi LondonKat

I'm sorry to hear of your diagnosis and that you have a son who will need supporting as well. My 2 children are adults but one lives 3 hours drive away so I don't get to see him very often. 

My journey hasn't been easy unfortunately but that's not to say yours won't be. 

I should have been on about week 10 this week of weekly chemo but due to one thing and another including hospitalisations for blood clots and allergic reactions I've only had 2.5 doses. They have changed my drugs and I now have it every 3 weeks. 

On a positive note though I did see a big shrinkage of my lymph nodes after just 3 weeks (only 1 chemo session) to such an extent I couldn't feel it. It had been the size of an egg literally. I had started off on carbuplatin, paclitaxel (allergic reaction to this so it got changed to nab-paclitaxel this week) and immunotherapy. I have 1 more session of this and then i have EC and immunotherapy. They will then look at surgery and any other mop up chemo / radiotherapy afterwards.

With your treatment expect a lot of ups and downs with lack of routine due to things not going quite to plan and remember to chase them - I had to remind them I needed an appointment so I could sign the new consent form. 

The other thing I've learnt is to use the rapid response (as it's called in Nottingham) they will advise you on what you need to do if something isn't right for you. I've used them 4 times now - 3 out of those 4 times I've had to be admitted, yesterday's time they asked me to go in so they could check me out and sort some pain relief out.

Best of luck for your treatment and that it goes smoother than mine has so far - even though mine has been very up and down I've still managed to go into work some days to keep that sense of normality and routine but don't pressurise yourself. My employers have been great telling me to work as and when I can -  I just let them know when I'm going in via a text message. (Small company and can accommodate this)