Hi,

I’m commenting as I would also be interested to see responses to this.

I have had scans and a needle aspiration on a salivary gland and now have an in person appointment this week with the ENT team, which I assume is for the results as the tests were done before Christmas (the aspiration around 6 weeks ago now!). 

I have only had one ENT appointment to now and it was largely with a lady doctor with a surgeon coming in for a couple of minutes towards the end. The letter for this week’s appointment didn’t give a specific name of who I would be seeing (it just says the name of this same surgeon or a member of the ENT team as it did for the first initial appointment). I also feel a bit like you in that I don’t necessarily know who and what to expect! The phone call booking the appointment and the confirmatory letter makes no reference to oncology for me, but I don’t know if that means anything one way or the other. Like you it raises many questions (does the timescale of the appointment mean anything, why is it in person and not a phone call etc.) but I am trying my best not to read too much into it, but it’s difficult during this long drawn out process!

I hope all goes well in your appointment and that you don’t have much longer to wait for answers x

I haven't even had a letter. I'm going to try and phone the  doctors in the morning. Good luck you too.

Hahaha, yes we are. I think that’s a theme of this whole process! I know they say less is more, but definitely not in these circumstances!

Wow, they have made it confusing for you! Definitely call tomorrow and I hope that clears up any confusion for you and please do update me!  

Hi, I was just wondering if you managed to get some clarity on things?x

Sorry I said I'd let you know. The appt is definitely for results. But it's the Colposcopy area x

Plus o received a letter yesterday to confirm the appt.

Oh that’s great, I’m glad to see it has been clarified for you. I hope it all goes well for you!x

Thankyou. When's your appt?

It was earlier this afternoon. I’m so lucky to have been told that it’s a benign tumour. It will need surgery (as expected), likely to be in the spring but with the NHS who knows?! I will have a call with the surgeon to discuss the finer detail in a few weeks, but I said in today’s meeting I want to go ahead with the surgery and I was told I would be added to the waiting list. So it’s not all over yet, but to hear that it is benign is a relief and I am so grateful and thankful as it could have been different! 

Brilliant news. Doesn't really matter about the op., does it. As long as it's benign. Phew x

Thats brilliant news xx 

Exactly. It will have its risks as all surgery, but it needs to be done as it’s not going to just disappear by itself, so I’m not worrying myself over it. I just feel so incredibly lucky. Going through this has taught me so much about how life could just change. If you feel you can, please do keep me updated on how you get on x

Exactly. It will have its risks as all surgery, but it needs to be done as it’s not going to just disappear by itself, so I’m not worrying myself over it. I just feel so incredibly lucky. Going through this has taught me so much about how life could just change. If you feel you can, please do keep me updated on how you get on x

Thankyou. All the best. And, will do x