HI Michj,

A very warm welcome to our forum.

I am sorry to hear that you feel so let down by the health system over the holiday period. Why don't you phone your mum's GP and explain that your mum is still in pain, with the Morphine that she's been given. Does she have any nurses or carers coming in to see to her needs? It sounds as if this should be being arranged for her too.

Please keep in touch and let us know how you get on. We are always here for you both.

Kind regards,

Jolamine xx

Hi thankofor replying Jolamine ,

sorry I haven’t replied .

we are just so frustrated with the care givenso far .

They are so clinical and our McMillan nurse seems void of any feeling.

They don’t want to give my mum any more steroids , so she picked up for a bit whilst she was on them and now back to sleeping a lot and in pain .

they have upped the morphine tablets .

They have also said her cancer markers have gone up from 210 to 250 and said it’s spread , but didn’t elaborate or explain any of this in easy terms .

they have stopped her treatment and said they will discuss a different treatment next week , then ended phone call so embryo t without asking if we had any questions.

this means my mum would have had no treatment for six weeks .

The Gp told us to speak to oncology.

pass the buck all the time .

I really didn’t think the care would be this awful , no care or compassion.

thanks for listening to my moan and responding to my last post .

xxxx

take care in your cancer Journeys people and really hope your receiving better care than my mum , who has paid in all her life …. Makes me want to Jump of the grid and not pay into the system anymore.

Hi Michj,

Have you tried writing down any questions you have, or any aspects of your mum's care, that you are unhappy with. Make it clear at the start of any conversation, that you have questions that you need answers to.

If you don't get anywhere with this, have you heard of PALS (Patient Advice and Liaison Service). They offer confidential advice, support and information on health-related matters. They provide a point of contact for patients, their families and their carers.

You can find this service on the NHS website, from your local GP, or hospital.

"PALS can give you information about:

the NHS

help you with health-related questions

help resolve concerns or problems when you're using the NHS

tell you how to get more involved in your own healthcare

the NHS complaints procedure, including how to get independent help, if you want to make a complaint,

support groups outside the NHS"

Don't hesitate to contact them  in the hope of forcing some improvements to take place. You are not asking for anything that your mum is fully entitled too.

Kind regards,

Jolamine xx