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Pembrolizumab

HarlyD
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Hi, I have had sentinel lymph node biopsy that has come back positive and now have to decide if I want to have Pembrolizumab treatment, I have looked at all the possible side affects and really don't know which way to jump, is there anyone out there that has been in this position and can advise, if anyone has had this treatment and how it affected them. I only have a short time to decide so any advice would be welcomed. 

Thank you

Parents
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    Hi all

    I am on Pembrolizumab and have just had my 6th out of  9 infusions.

    Side effects wise ... Well it's like Xmas every day .... You get up and wonder what gift it's (pembrolizumab) is going to give you today lol .

    To be fair I've been ok ... Fatigue is my main side effect, the day after my infusion I am usually wiped out and then it comes on totally at random but I am still holding down a 40hr working week.

    Brain fog is another one but my other half says she doesn't notice the difference to any other day lol.

    And a new one that's only came on after infusion 5 is explosive diarrhoea   lol I  get about a 5 min warning ️ lol

    But again it's random  once a day  maybe 3 times a week . My consultant is aware and is not concerned as I am coping well, no weight loss and it's not constant .

    But on a positive .... I'm NED 

Reply
  • Offline

    Hi all

    I am on Pembrolizumab and have just had my 6th out of  9 infusions.

    Side effects wise ... Well it's like Xmas every day .... You get up and wonder what gift it's (pembrolizumab) is going to give you today lol .

    To be fair I've been ok ... Fatigue is my main side effect, the day after my infusion I am usually wiped out and then it comes on totally at random but I am still holding down a 40hr working week.

    Brain fog is another one but my other half says she doesn't notice the difference to any other day lol.

    And a new one that's only came on after infusion 5 is explosive diarrhoea   lol I  get about a 5 min warning ️ lol

    But again it's random  once a day  maybe 3 times a week . My consultant is aware and is not concerned as I am coping well, no weight loss and it's not constant .

    But on a positive .... I'm NED 

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