Cancer Research UK main site

All Categories

Introduce yourself Coping with my Dad being diagnosed with cancer.

Coping with my Dad being diagnosed with cancer.

Offline memebirdxex 5 months ago

Hi,

My dad was diagnosed with Myelofibrosis around 5 months ago and still hasn’t been offered any treatment.

I don’t know if he is hiding things from me or if he actually hasn’t been offered anything.

I feel bad for asking him all the time as he doesn’t like people fussing over him.

I just don’t know what to do.

annie123 5 months ago

Hi and welcome to the forum,

It may be that your dad is on what they call 'watch and wait', where you are in the very early stages of the disease and they just monitor you without active treatment. This seems odd, but I believe that even if you are diagnosed with this type of blood cancer, not all patients go on to develop the full blown version that needs aggressive treatment.

I am not a patient with this myself, but I have a friend whose husband had it. She said that when he was diagnosed they had difficulty finding information on it, she said that the website: mpnvoice.org.uk was a very good source of reliable information.

I hope that you find some information, that will help you clarify the situation with your dad.

Best wishes

Annie
Cancel
Join to reply Sign in to reply

Cancel
Offline memebirdxex 5 months ago in reply to annie123

Hi Annie,

Thanks for your reply.

I did read that that can sometimes be the case sometimes it’s just hard watching him wait around as it’s affecting his mental health.

Thank you.
Cancel
Join to reply Sign in to reply

Cancel

Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.