I first started seeing symptoms in October 23 but wasn't diagnosed with Lymphoma until Feb/Mar (mostly my fault, I should have pushed harder when I knew the GP was fobbing me off). Care since then has been excellent, BUT: what they don't tell you, and I completely agree with the reasoning by the way, is this:
When we put you on a given Chemo cycle and say six months to remission it actually means, we're going to try these meds and see what happens. So after four cycles which significanlty removed masses in Stomach, neck and Bones the chemo stopped having an affect on protein markers so I switch to a second drug, which also required weekly plasma transfer but after two/three months of that it was clear the pesky protein wasn't going to shift. So third round of drugs has started and prognosis for remission not out to April when I 'may' be stable enough for Stem Cell transfer.
All of this, annoying and frustration as it can be is nothing compared to what others are suffering but this week I've had a particular problem and if anyone has been here please give me some advice:
On Tuesday I woke up with a slightly sore throat and minimal cough, It was a chemo day so I want in, temp etc was fine so we went ahead, by 6pm my temp was 39.5 and had been over 38 for a couple of hours so cue a night in A&E (equally excellent treatment btw). They did blood tests etc and confirmed it was not a reaction to chemo or a common virus, flu,cold,covid, etc. So I got home with antibiotics and after another 24 hours sweating and shivering, felt much better so I possibly stupidly went to work (from home) by mid day I was feeling rough again but soldiered on (definite stupidity at this point). Now I've awoken on day3 and my temp is stubbornly above 38.
My question then is do I let my body burn (baby) or just take some Lemsip and hope for the best?
Thanks for reading if you got this far?