Newly diagnosed Glioblastoma

Hello everyone, as the title says literally confirmed today, I would appreciate any help or advice however small on anything I could or shouldn’t expect 

regards Sean

Parents
  • Hi! I have recently been diagnosed with a Glioblastoma- Stage 4.  It's the aggressive Cancer type, so I know it can't be cured.  The tumour was sat in the right frontal lobe of my brain.  It was removed by operation a short time ago.  I have let any extra tissue that remained be used for research.  I know that I will be starting Radiotherapy, and Chemotherapy tablets in a couple of weeks.  The thing I have noticed the most is my energy levels aren't great.  They fluctuate every day, so have to stick to new limitations on what I can do.  You might find yourself feeling more exhausted more quickly.  I also seem to be more thirsty at the moment, so have to try and stay well hydrated.  I think now that the key is to cope with any side effects I might have, or get when treatment starts.  Am already under a Community nurse, who also helps with Palliative care team in my area.  I am taking each day as it comes.  I am thinking about how to make the most of the rest of my time, however limited it possibly could be.  

Reply
  • Hi! I have recently been diagnosed with a Glioblastoma- Stage 4.  It's the aggressive Cancer type, so I know it can't be cured.  The tumour was sat in the right frontal lobe of my brain.  It was removed by operation a short time ago.  I have let any extra tissue that remained be used for research.  I know that I will be starting Radiotherapy, and Chemotherapy tablets in a couple of weeks.  The thing I have noticed the most is my energy levels aren't great.  They fluctuate every day, so have to stick to new limitations on what I can do.  You might find yourself feeling more exhausted more quickly.  I also seem to be more thirsty at the moment, so have to try and stay well hydrated.  I think now that the key is to cope with any side effects I might have, or get when treatment starts.  Am already under a Community nurse, who also helps with Palliative care team in my area.  I am taking each day as it comes.  I am thinking about how to make the most of the rest of my time, however limited it possibly could be.  

Children
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