Paediatric tectal glioma

My 15 year old daughter has just been diagnosed with tectal glioma brain tumour after a whirlwind week of MRIs. She’s just had a drain put into her brain to help removed trapped fluid. Monday is the first multidisciplinary meeting to get the formal diagnosis for staging. How do other parents cope with new diagnoses while supporting their other children, while continuing to work full time and juggle hospital appointments? I’m a solo/single parent and I have no family to provide any kind of support emotionally or with my other children. Feeling totally overwhelmed. I’m also not sure how to tell my other teenagers - my youngest is 13. Advice welcomed. Thank you. 

Parents
  • Hi Emonty,

    What a terrible position to find yourself in. Unfortunately, I cannot offer you any advice. I just want to let you know that I am thinking of you and willing you the strength to cope with this.

    Now that you have found this forum, you need never feel alone again. There is always someone here to support you.

    I hope that you will get more clarification in respect of staging after Monday's MDT meeting. Please keep in touch.

    Kind regards,

    Jolamine xx

Reply
  • Hi Emonty,

    What a terrible position to find yourself in. Unfortunately, I cannot offer you any advice. I just want to let you know that I am thinking of you and willing you the strength to cope with this.

    Now that you have found this forum, you need never feel alone again. There is always someone here to support you.

    I hope that you will get more clarification in respect of staging after Monday's MDT meeting. Please keep in touch.

    Kind regards,

    Jolamine xx

Children
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