Newly diagnosed with lung cancer

Had Covid in August, it left me with a nagging cough, no blood, but felt a bit dizzy and as I have AF was worried enough to go online through to 111 for advice. 
skipping to the bit at hospital chest X-ray at A&E showed a shadow and they made appt for a CT scan.  Had that and they sent me to the chest clinic, they said there was a 3.2cm lesion and wanted me to have further tests within 2 week pathway,  tests included bloods, lung function tests, PET scan, ECG and EBUS Bronchoscopy and the diagnosis has come back as…..

stage 3B non small cell lung cancer -Adenocarcinoma T3-N2-M0 right lung, middle lobe.

I am shocked as I feel great, I go to Zumba, yoga, walk my dog 2-4 miles day, I have a huge garden that needs mowing digging weeding, I have no pain and I only cough a couple,of times a day now, mainly in the morning, hardly ever at night, no breathlessness, absolutely nothing.  I felt a fraud having all the tests thinking I was taking a place someone else urgently needed. 

I am booked in for an MRI scan on my head on Tuesday, then I will see the oncologist Thursday to get my treatment plan.  Although I’m told there could be a 4 or more week wait for the start of treatment.

My first question to the oncologist is … Are you absolutely sure I have this?  How come I feel as good as I usually do?

I am hoping to find someone on here with a similar diagnosis to gain insight into your experience as I am clueless on what to expect. How you cope with the treatments, what would you say to a newbie?
I’ve been advised by the chest clinic that I will likely have radiotherapy, chemo and might have some,tailored immuno. I know my oncologist will have that info.

i wish none of us had to be here, the only way out is forward….

thank you

Parents
  • Hi.

    I hope everything is going well for you.

    Like my hubby, no symptoms. A routine x ray showed a lung lesion that was on the 21st Jan, fastward to now. CTscan, pet scan shoes a 5cm lung mass & an enlarged lymph node lower right lung.

    Telephone call with doctor yesterday said all treatable, but a biopsy being done & treatment plan after.

    Within 4 wks our lives have gone from happy normal planning holidays etc to a daily living hell of " is this real".

    He isnt coping, just refuses to talk about or packs a bag & runs away, literally! 

    I've been dealing with calls, appointments etc & feel like I've aged 50 yrs overnight.

    I always thought lung cancer would show a sign cough, blood, wheeze, weight loss etc but nothing, unless hayfever counts...

    I wish you well x

Reply
  • Hi.

    I hope everything is going well for you.

    Like my hubby, no symptoms. A routine x ray showed a lung lesion that was on the 21st Jan, fastward to now. CTscan, pet scan shoes a 5cm lung mass & an enlarged lymph node lower right lung.

    Telephone call with doctor yesterday said all treatable, but a biopsy being done & treatment plan after.

    Within 4 wks our lives have gone from happy normal planning holidays etc to a daily living hell of " is this real".

    He isnt coping, just refuses to talk about or packs a bag & runs away, literally! 

    I've been dealing with calls, appointments etc & feel like I've aged 50 yrs overnight.

    I always thought lung cancer would show a sign cough, blood, wheeze, weight loss etc but nothing, unless hayfever counts...

    I wish you well x

Children
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