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Just diagnosed with Neuroendocrine tumours in the tail of the pancreas

Nanageegee
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I have been diagnosed with Neuroendocrine tumours in the tail of the pancreas and have been advised that the best treatment is regular 28 day injections of Lanreotide.

i have had 2 of these and the dreadful symptoms last over 2 weeks once extent that I have no life.

i can't spend time or go out to meals with friends and I haven't had a proper meal in 6 weeks and have felt absolutely dreadful.

i have made the decision to stop these very expensive injections and take my chances on maybe 4-6 year survival rate but with being able to live my life playing tennis and eating and going out with fritndd and playing tennis several times a week which I can't do now

has anyone else on here been in the same dilemma?

  • Welcome to the forum Nanageegee although I'm sorry to hear you've been diagnosed with Neuroendocrine tumours in the tail of your pancreas.

    Hopefully some of our members who have been in a similar situation will be along soon to share their experiences and advice but if you'd like to talk any of this through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to support you and answer any other questions you may have at this time.

    It must have been very difficult to make the decision to stop your treatment Nanageegee but I and the rest of the Cancer Chat community are here for you and sending all our strength and support your way.

    Kind regards,

    Steph, Cancer Chat Moderator

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