Hello - what a week, head spinning and where to start?

Hi all,

In the nicest way I am sorry to see you all here.

Last weekend I had some significant pain in my chest, as quick as it came it went away however my left arm felt a bit odd for a few days.

So after some nagging from she who must be obeyed I was sent to A&E by my local GP.

Their is a big family history for heart disease on both side of my parents so whenever there has been chest pain this has been the go to route.

I was examined for a Stroke, ECG and blood taken for what looks like a full set of tests.

I was told to wait and a doctor would see me later in day.

I was not at all ready for what was to come ( I guess none of us really are ) I could see the results coming through on the NHS app.

I thought to myself green must be good but red cant be and they said out of range?

I was called into see the doctor thinking we were going to talk about a possible cardiac episode and then a consultant entered the room.

Started to talk about my blood tests and told me all the signs are their for Leukaemia.

More blood was taken for further testing, the rest of the night is a blur, I came home told my wife and 2 boys.

Had a call the next day from a doctor from haematology who feels at the present time the initial diagnoses is chronic myeloid leukaemia.

I am booked in for an ultrasound next week and a face to face by the end of the month when a diagnose will be confirmed and treatment started.

I am aware there are many " Flavours " of leukaemia and I am trying my best not to google it.

I am bouncing from ok to breaking down trying to wrap my head around it so far.

Sorry if you still reading this I am just rambling on just trying to make sense of it all, I guess I am lucky that it was spotted now as I am 45 years old from what i understand not common for my age but I don't know.

I just hope i can get some answers over the next few appointments.

But how do you react to the news? I feel cheated, angry but also happy its me and not my family as odd as that sounds.

I get asked am I ok and I say yes but I'm not but I don't want to be that guy if you know what i mean......

Thanks for reading,

I wish you all a relaxing weekend.

D

Parents
  • Hi DM4047

    So sorry your going through this .. I felt exactly the same ( remember your not on your own) 

    when I attended my appointments I always took a list of questions sometimes we can get caught up in the moment then when we’re home we start to think! Wish I would have asked this and that etc.. also I always took a member of my family along for support I strongly suggest you to do the same if your in the position to do so 

    Wishing you well 

    Debra 

Reply
  • Hi DM4047

    So sorry your going through this .. I felt exactly the same ( remember your not on your own) 

    when I attended my appointments I always took a list of questions sometimes we can get caught up in the moment then when we’re home we start to think! Wish I would have asked this and that etc.. also I always took a member of my family along for support I strongly suggest you to do the same if your in the position to do so 

    Wishing you well 

    Debra 

Children
  • Hi Debra,

    I hope your well.

    Thanks for taking the time to send me a message.

    It's very appreciated.

    Great idea on the list, after each call I have more questions than answers.

    Lucky both mine and my wife's work have been accommodating, supportive and flexible so we can beat balance these early days.

    Darrell.