I am sorry to hear you are going through this .  My diagnosis is the same, but I have 6cm at the bottom of my breast and a 1.5cm under my nipple.  I am having surgery on saturday.  I haven't been prescribed any medication since diagnosis though.  X

Hi Jovie

so sorry to hear of your diagnosis I send you wishes and hope your surgery goes well and you have a good recovery. Thank you for your message i appreciate it. Keep me posted on your progress and keep positive through the process. They say to me it’s been caught early I hope you can take comfort that someone else is on this journey and you are it alone xxx

Hi,

just checking in to see how all is going and hope you are ok xx

i am getting anxious now as pre op this Friday ..it’s says 2 hours so not sure what’s involved at this appointment?

feeling nervous for op date next Friday but relieved it’s nearly here in a strange way

My minds been going crazy with worry of spread and will they tell me when I come out of surgery ♀️ 

hope you are ok thinking of you 

xx

Hi saralou123, 

Pre op is weigh, height, bloods, all information on you , like previous ops, medication etc.  I was given a sponge to wash with on morning of op before going to hospital.  

Just a information letter saying what time you can eat and drink till.

It may not be 2 hours, I think they just say allow that much time.  

They won't give any details of surgery as you will get results in around 2 weeks .  The surgeon will come and see you just to let you know how surgery went.  

I know it's really easy for me to say, but keep going with your deep breathing now to keep yourself relaxed.   

Set your little area ready for when you are home.  If you have a fan, maybe put at side of bed as you may feel hot .  Keep items within reach. Make sure you have tissues, lipbalm etc. 

You will be looked after.  You are in our thoughts and prayers

JUST REMEMBER!

They are getting this little *** out. 

Lots of love Jovie xx

Hey Jovie,

good to hear from you and thank you for the info it has helped reassured me xx

started breathing and been doing the arm exercises. I take meds for high BP so I can only do my best at keeping relaxed and calm

pre op Thai Friday at 9 so early then back home to work keep me busy xx

I think next week will be the hard week up to op date so will keep doing relaxation techniques 

lots of love

Sarah

You got this.  Keep positive.

My friends mother has just has her mastectomy and she had very high blood pressure and she to was really worried.  She is 80yrs. She is absolutely fine.  All her result are back and just need hormone tablets for 5 years.  

I am hoping to get my second op results this week, so I can prepare for next treatment.  

Forgot to say , I bought freshwipes online, as showering was difficult for me.  I found these so handy. 

Xx

Thank you for positive vibes appreciate your lovely words

gives me strength too if at 80 and can get through I’m positive I will be ok xx

stocked up in the wipes xxx 

let me know how your results go and what ever they are keep strong and positive you sound like you got this and all will be good 

xx

Hi Saralou,

As Jovie has already said, pre-op is very straightforward - just all the details they need to know before taking you to surgery. It is unlikely to take as long as 2 hours, unless you have a lot of medical details to discuss.

After your surgery, the tissue removed will be sent to Pathology for testing. The two main things they are looking for are to ensure that all of the cancer has been removed - this will be done by checking that they have achieved a clear margin. The other thing is to confirm the type of cancer. You will normally get your results about 2 weeks after your surgery. You will unfortunately, need to go through this additional waiting period, before you get the results.

Kind regards,

Jolamine xx

Hi saralou123, how did today go ? X

Hi Saralou,

I hope that all went well with your pre-med today and that you weren't kept at the hospital for too long.

Regards,

Jolamine xx

Hi Jolamine,

All went well as you said xx my BP was high but that’s to be expected as I suffer with high BP and been on meds for years 

Went in at 9 and left at 12 so not to long

was exhausted when got home but I’m glad all is good and now countdown.

Hope you are ok and well 

Regards

Sarah

Hi Sarah,

I'm glad to hear that all went well with your pre-med - another thing ticked off! Many people develop white coat syndrome when they attend a doctor or hospital, This causes their blood pressure to raise. Three hours was quite a lengthy appointment, so it's no wonder that you felt exhausted.

Not long now until your surgery will be over and done with - I'm sure that you'll be glad to get it out of the way before Christmas. I shall be thinking of you on 20th.

Kind regards,

Jolamine xx

Hi Sarah,

I'm glad to hear that all went well with your pre-med - another thing ticked off! Many people develop white coat syndrome when they attend a doctor or hospital, This causes their blood pressure to raise. Three hours was quite a lengthy appointment, so it's no wonder that you felt exhausted.

Not long now until your surgery will be over and done with - I'm sure that you'll be glad to get it out of the way before Christmas. I shall be thinking of you on 20th.

Kind regards,

Jolamine xx

Hi Jolamine,

Thank you for your message xx All ready now and packed my hospital bag today so feeling all ready now to get this C out and enjoy Christmas with the hubby

You take care of you too and hope you are well 

Kind Regards

Sarah xx

Glad all went well with pre-op. X  Not long to wait now. Stay positive.  I got results yesterday.  There was no cancer in the margin of second op, so very happy. Next is radiotherapy.  I have some fluid removed Thursday. Going  back Thursday next week to check as a small bit of infection left to clear .  Wishing you all the best.  Take care. Jovie xx

Hi Sarah,

It's good to hear that you are all ready. It's a pity that you date is so close to Christmas, but I'm sure that you'll just be glad to get it over and done with.

Please let us know how you get on with your surgery, when you feel able.

Kind regards,

Jolamine xx

Hi Jovie,

I am delighted to hear that your margins were clear, but sorry to hear that you have a slight infection still. It is good to hear that your care team are going to check on this again next Thursday - here's hoping that it has healed by then.

They will probably leave your breast to heal for 6-8 weeks, before they start you on radiotherapy.

Kind regards,

Jolamine xx

Hi Jolamine,

I did wonder if they would wait until the infection has healed before starting radiotherapy.  

To be honest it will be nice to not have to keep going to the hospital for a few weeks, as I really don't want to pick up any bugs that are going around.

Kind regards,

Jovie xx

HI Jovie,

I'm pretty sure that they won't do any radiotherapy until your wound is fully healed, so make the most of this time, without having to travel to any from hospital.

Kind regards,

Jolamine xx 

Hi 

surgery went well and I was home by 9pm on the evening. Sore and painful but I was surprised how well I was considering. The day was long as there at 7 and op was 2.40 in afternoon. No drain so that’s good too.

They have remove a lot of the boob and there is a massive difference between the 2 but as long as they have got everything they needed out all is ok with me 

back on Monday 23rd Dec for dressing change and see consultant 

results of biopsy won’t be until into the new year but the surgery of removal they did went well is what I was told

Next day I started the arm exercises and feel I have good movement and no pain so keep continuing these through the day 

I met so many inspiring people going through different things and just talking to them it was emotional but the same time comfortable we are all on our own journeys the love in the room was felt

now for rest and recovery xx will keep you posted when I know the next plan. Hope you are both  ok too and keeping well 

sarahlou

xxx

Hi saralou,

I am so glad that all went well and you are now recovering.  Drink plenty and lots of rest.  You got this.  Have a lovely Christmas.  

Jovie xx

Hi Saralou,

I'm delighted to hear that all went well and that you didn't need a drain. You're doing well if you are managing your exercises already. Keep doing them every day, as it does make a difference,

Please keep us posted on how you're doing.

Kind regards,

Jolamine xx

Hi,

just update to let you know I am 1 week and 3 days in recovery. Not had pain as such just aches under the armpit xx went back for dressing change Monday after the Friday and they said all looks ok.

struggling with the stockings as so tight I have to take off for a couple of hours when moving about just to have a break but then straight back on

when do you remove your dressing ? My next appointment for results is 22 Jan so I can’t wait until then and the nurse did say remove when your ready and shower but leave the steri strips to come off when shower. They didn’t give me any time to leave on or when to remove 

Can’t wait for the nice soak in a bath 

hope you all ok and keeping well

Take care

sarah xxx