Glioblastoma Grade 4 brain cancer

Does any one here have this hideous disease, if so has it affected your hearing, do you have a sense of feeling cold, mine was right front lobe and has affected my left hand side of my body, I’m trembly, I have a very dry mouth and throat, I’ve come out in a rash on my arm, leg, feet, buttocks and shoulder…

I am due my third 5/23 regime, after craniotomy 15/6/24 with radiation and chemo treatment for 3 weeks

  • Hello Gretch, 

    I hope that you will hear from other members of our community who have been diagnosed with Glioblastoma and who were affected in a similar way. Poor you, it might be worth if you haven't done so already mentioning these issues to your medical team to see if there is anything they can do to help for example to eradicate this rash which seems to be in so many parts of your body. 

    If you'd like to talk any of this through with one of our cancer nurses, they're available on 0808 800 4040. Their phone lines are open Monday - Friday between 9a.m - 5p.m and they'll do all they can to support you and address any other worries or concerns you may have at this time.

    I noticed there is another member  who posted this thread only yesterday. Her husband was diagnosed with glioblastoma last month and had surgery and is about to start his combined radiotherapy and chemo next week so don't hesitate to respond if you feel like talking to someone else who understands what you are going through at the moment. 

    Best wishes and best of luck with the rest of your treatment, 

    Lucie, Cancer Chat Moderator