Prostate

Stage 3. Started with a PSA of 402 and a Gleason of 9. Just celebrated 1 year since I finished radio therapy treatment. PSA is less than 0.2 now. Hormone treatment has been quite the experience and I have my good days and my bad but I find being open about it and just talking helps a lot. 

Parents
  • Hi, Firstly well done on finishing your treatment, hope you feel much better. I am in the same position and wondering about the Hormone treatment. Can you say in what ways it affected you . Thank you. 

  • Thank you Tel333. When I received my first dose of hormone it took about half a day before I began to feel the effects. It started with the night sweats. I literally had the sweats every couple hours and had to stand in front of a fan to cool off. These lasted daily for about 2 weeks then tapered off and now only get them maybe once every 2 weeks. Then came the emotional effects right on top of the sweats. I would just stop and begin to cry over even the simplest of thoughts. I found it hard to control and it was easier just to allow it to happen. It was happening at least 6 times a day at first then it also tapered off. I now get these only about once or sometimes twice a week. Tiredness as well, which I still have and joint pain. I have arthritis and the drug (decapatyl) causes it to flare up and amplifies the condition. Weight gain is another side effect I have as well. I watch what I eat and stay as active as I can to limit weight gain. Trouble sleeping as well and up every few hours to use the toilet. With regards to the radiotherapy I ended up 9 months later getting Radiation Proctitis. It’s inflammation of the bowel from the radiotherapy. It’s like having really bad IBS or colitis but it comes and goes. Sorry I know what I have described sounds horrible but I am alive and that is what really matters. I found talking about my cancer openly helped me adjust to the side effects because I realise I am not alone in this journey. The road I travel with the cancer isn’t just mine….its ours and the more we talk the better the supports we have for each other. 

  • Thank you Mac211. I already suffer from PTSD so this does worry me in all honesty. Take Care. 

  • Ex forces so I also suffer from PTSD. Just keep talking and asking questions. Take care

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