Scared and in terrible pain - blood in urine for 17 months and still no formal diagnosis

Hi I’m Leony 64 years. I’ve had blood in urine for 17 months now and despite my desperate efforts to get help investigations are just beginning. Awaiting possible urothelial cancer diagnosis. Also further enlargement of a common bile duct. Because I have no formal diagnosis yet I’ve had to make do with no help and no benefits. I feel very ill now. Has anyone else here had such a horrible experience of delayed diagnosis and its consequences? 

  • Hi, I am in nearly the same situation. Delays in accessing the basic means for diagnosis and waiting weeks just for a blood test. I am losing weight uncontrollably and just feel unwell. We can just chat with each other if you need someone to talk to.