Hi to anyone out there who comes across this post, I hope you are as well as you can be.
My beloved son was diagnosed with a pineal lesion in 2013 and operated on shortly thereafter, initially a biopsy was performed following by further endoscopic surgery to reduce the tumour although, per most pineal lesions it could not be removed completely due to the location of the tumour which was too near to the brain stem.
He then went through 6 weeks of radiotherapy in attempt to reduce the tumour down to a “nub” which was successful.
He has then been followed up with numerous consultation’s with his surgeon ,with endocrinologist's, and everyone else in between and been contrast-scanned latterly every 12 months.
He went to (what he thought was a routine) appointment with his doctors following his latest scan and was told that there had been “a change” in the lesion’s size so will need a scan on his spine next week and then a consultation to decide and plan for further treatment options.
He phoned me during the consultation as the news (literally) went over his head and I spoke to the doctors as above.
He then phoned me from his car and we both burst into tears!
I accompanied him to EVERY single appointment throughout, from his initial diagnosis,to his radio treatment ,scans, and appointments thereafter and only stopped a while ago when he said “no dad,I’ll go on my own today-no worries “ which I was fine with ,until this morning!
He said to me on the second call from outside the hospital.
“I knew something was ‘up’ as soon as I went into the consulting room, there were two off them!”
How I wish I’d have been able to be there with him, his mum even asked him last night if he wanted me to go to the appointment with him!
Anyway, we’re a very close, loving family ,and will get through this together ,whatever happens, but we’d all locked the “thing” away in a box and put it on top of the wardrobe never to be seen again, but as my boy said to me when he was in bed following his second operation, with drain tubes and bags coming out of him, “it is what it is dad”
God, how I wish that it wasn’t!
