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What next? In April I was told I had 10 weeks, and moved into a nursing home, but 6 months on, I'm still here and feeling well

Delyn
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I have been having treatment for cancer for 8 years now, I started with colon had tumours removed and a stoma along with chemo, a couple of years later it was liver, chemo and surgery, now lung, chemo but it has spread, in April I was told 10 weeks and have moved into a nursing home, I no longer receive treatment just palliative care, the thing is it's 6 months and I feel very well considering I have no pain and was wondering as I am no longer monitored could there be a chance I could have gone into some sort of remission. The nursing home does no medical check just makes sure that I am comfortable. I could be here for years. Keep smiling. 

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    Would ask for a complete check. having tests re done would at least put your mind at rest. Medics are always reluctant to go back on things but you are entitled to a second opinion. Have you an advocate who will stand up with you to get your rights. Was the decision to go down the palliative care route yours? was it discussed with you. Or did your medical team make that decision.  

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    Hi Delyn,

    A very warm welcome to our forum. 

    Many people here have been "dealt an unfair hand", yet have beaten all the odds and are still here many years on. I am delighted to hear that you are still feeling so well, despite the gloomy prognosis. Remember, that any prognosis is based on the average outcome for cancers of a similar type and stage. The problem with this is, that not all people are "average". With all that you have been through to date, it sounds as if you are a strong person and possibly fall out with "the mould".

    All I can say is - "live in the moment and enjoy the dawn of every new day". I do however agree with Dolly's advice. Your nursing home will have a dedicated doctor to look after all of the residents. It is great news, that you haven't had to see this person yet. You are entitled to see a doctor at any time, so do please request one of your nurses to arrange a visit. Do you have a Power of Attorney in place? This is very helpful, as it means that you have an advocate to ensure that your care needs are seen to and not overlooked. This person can be a family member or close friend.

    I sincerely hope that you continue to remain with us, for as long as you remain well. Do please keep in touch and let us know how you get on.

    Kind regards,


    Jolamine xx

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