Ovarian cancer

I started with abdominal pains on day 1 of my holiday in Tenerife and was admitted to hospital where I was given CT and MRI, plus Gynae ultrasound. 

Diagnosis of abdominal mass  sent home on scheduled flight with pain management.

In the GP the next day and fast tracked through with more tests.

Uk diagnosis of a uterus full of large fibroids, a 14.5cm ovarian cancerous cyst which had twisted and burst and fluid in my abdomen which was making me look 9 months pregnant with twins. 

6 weeks to the day of getting home from holiday, i was on the table having a total hysterectomy, ovaries, tubes, appendix, lymph nodes removed, plus fatty lining of the abdomen and bowel nodules "scraped".

40 staples holding my abdomen together.

I'm now 3 weeks post op and waiting for an appointment with the oncology team to find out what the full diagnosis / stage is and if I need any further treatment.

I haven't cried at all yet. I think I'm worried that it won't stop if it starts. I'm so hopeful that the surgery will be the end of it, but I have such a bad feeling.

Such a terrifying process.

Love to you all going through similar things. Xxx

Paula. Xx

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  • Hi Paula, are journey seems similar. Had a large ovarian cyst (left side) that burst whilst driving, went straight to A&E as had severe pain. That's when I found out it was a cyst. (I'll add same thing happened when I was 19, right side).

    They removed the left ovary, fallopian tube and cyst withing 24hrs that was on February 26th .

    3 months later May 27th I was told I had ovarian cancer. Noone knows why it took so long to notify me. It was an absolute shock.

    Like you, July 24th i had a total hysterectomy and omentectomy, 40 staples. I'm now 7 wks post op and doing well. 

    Spoke with surgeon last week and I'm stage 2 grade 2a. Ther wa sa small.amount of cancer in my womb, 2mm.

    Spoke today with my consultant about treatment and they've said its up to me if I choose to have chemo. They won't comme t on if they think o should have it as the cancer in my womb was such a small amount. 

    I'm now left completely baffled as to whether I have chemo or.not. I know nothing about chemo even with the books and leaflets I'm.still at a loss on what I should do.

    Glad yours has been caught early too, and I hope you're recovering well, it's not easy.

    Magz x

Reply
  • Hi Paula, are journey seems similar. Had a large ovarian cyst (left side) that burst whilst driving, went straight to A&E as had severe pain. That's when I found out it was a cyst. (I'll add same thing happened when I was 19, right side).

    They removed the left ovary, fallopian tube and cyst withing 24hrs that was on February 26th .

    3 months later May 27th I was told I had ovarian cancer. Noone knows why it took so long to notify me. It was an absolute shock.

    Like you, July 24th i had a total hysterectomy and omentectomy, 40 staples. I'm now 7 wks post op and doing well. 

    Spoke with surgeon last week and I'm stage 2 grade 2a. Ther wa sa small.amount of cancer in my womb, 2mm.

    Spoke today with my consultant about treatment and they've said its up to me if I choose to have chemo. They won't comme t on if they think o should have it as the cancer in my womb was such a small amount. 

    I'm now left completely baffled as to whether I have chemo or.not. I know nothing about chemo even with the books and leaflets I'm.still at a loss on what I should do.

    Glad yours has been caught early too, and I hope you're recovering well, it's not easy.

    Magz x

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