New member breast CA

Hiya,  I was diagnosed just over 3 weeks ago with high grade DCIS after a routine mammogram, I have surgery booked in for tomorrow.  Don't think  I've  had time to really process it yet, but I'm gettng rather nervous now ! I know it will be what it will be. Hate the ' not knowing' side of things.  Sorry for the rant, just wanted to let off steam 

Parents
  • Hi Polly I was diagnosed with DCIS 5 years ago. Had lumpectomy with no problems, a bit sore. When I saw the consultant post op they decided I needed sentinel node biopsies doing so had 2 general anaesthetics in one month which knocked me out a bit. Then after about 3 months had 15 sessions of radiotherapy which went well. It was just the every day round trip of about 40 miles for 3 weeks which was very tiring. Also had to take Anastrazole/Letrozole for 5 years.

    Hope everything goes will with your procedure and you do well. Don’t forget to do the arm exercises they give you to do, it really helps with movement and flexibility.

    All the best

    Mary

  • I'm so worried about the travel for radiotherapy, I don't know how I'm going to manage. It's 140 mile round trip for me, three hours travel per day. I'll have to do most of the driving myself as no one can get that much time off work to chauffeur me about. Is the tiredness from radiotherapy really bad? I keep telling myself I will manage the drive but obviously I don't want to be a danger to myself or others on the road if I'm too tired to drive. It's still a way off for me yet but I'm so worried about it :(

  • That’s a long journey for you to do, 140 miles is not good. It might be possible for you to get hospital transport but will be an even longer day. I would ask about that as my friend had it for her radiotherapy. I didn’t have to drive as my husband took me but think I would have been ok but your journey is much longer than mine was. 
    My husband has to undergo 23 sessions of radiotherapy in the next month, will take around 5 weeks and will be gruelling for us both. Luckily I can drive him this time around.

    Do you know if you will definitely need radiotherapy? Keep in touch and if you want to private message me I am happy to chat at any time.

    Love Mary

  • Sorry Mary, I missed this! Oh 23 sessions sounds a lot, I can't believe you are both having to go through it, seems so unfair. I will definitely be having radiotherapy after the chemo, I need 15 sessions as I didn't have a node clearance despite the positive node. I may be able to stay over but I really don't want to... I think I'm going to have to see how bad the tiredness is.

    Thanks so much and I hope you and your husband are both doing ok xx

Reply
  • Sorry Mary, I missed this! Oh 23 sessions sounds a lot, I can't believe you are both having to go through it, seems so unfair. I will definitely be having radiotherapy after the chemo, I need 15 sessions as I didn't have a node clearance despite the positive node. I may be able to stay over but I really don't want to... I think I'm going to have to see how bad the tiredness is.

    Thanks so much and I hope you and your husband are both doing ok xx

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