My husband was diagnosed with kidney cancer 5 years ago and had the kidney taken out straight away successfully.

THEN it metastasised to each lung , 5 on the thorax  and on his head. So he has Kidney cancer on Lung and kidney cancer if the thorax . 

the seven lesions on his head were removed successfully,

he felt fine… no drugs regular ct scans

THEN he had the pet scan it showed it had spread to the spine and bones.. was still feeling fine. Life and soul of the party everyone loved to be in his company.

THEN the fortnightly infusions and daily tablets started and it’s been down hill since. His infusions are one hour long.

he now is so tired he sleeps all day, is feeling sick EVERYDAY and doesn’t want to go out, doesn’t want to see anyone. He is on sickness tablets and anxiety tablets but it feels like he is fading away from me. I am so distressed.

PLEASE PLEASE if anyone is on Nivolab infusion plus cabozantinib 20mg daily tablets please tell me it gets better. I don’t know what to do.

He has his next CT on Monday then we see the oncologist the following Monday .

kind regards,

Ursula