Aprilmay - diagnosed with primary peritoneal cancer

On 11th June I was told they were investigating gating cancer. Over a fortnight later I was told it's Primary Peritonial Cancer Stage 3. Finally the the specialist at the hospital tomorrow to be told when everything starts etc.  Been up and down, nervous with the waiting and what I've heard about chemo. Feeling very bloated at best, pains when I turn or bend. Been told this type responds well to treatment but won't be cured have to live with it. All very scary. On top of that had to deal with authority as am a carer for dementia father had a bit of a fight over not being certain of ability to care for him, or others coming in - which didn't work before - on top of my own treatment. At the minute they're now keeping him in the home until we see how my body reacts. Had just finished a lot of counselling anyway to cope with caring but now have to go on a new list with this new circumstance.

So that's a brief synopsis so far.

I only know where I'm going tomorrow and roughly he'll confirm treatment will start. Just feeling detached, trying to keep busy.

But bit lost. Don't know what else to say. Oh 66 and just started getting my pension. Yay.

  • Hi Aprilmay, 

    It's normal to be lost and it must have been a bit of a shock for you to be diagnosed with stage 3 primary peritoneal cancer - this is quite a rare cancer and I hope that you will hear from other members of our community who have had a similar diagnosis in the past. I guess by now you will have seen the specialist and I hope that the appointment went well - did you find out anything new and have they confirmed when treatment might start? 

    Poor you having to deal with a cancer diagnosis whilst being a carer for your father who has dementia  - it must all be rather exhausting and I hope that you have some good support networks around you to help you cope during this uncertain time. You are right to try and keep busy at the moment - it's often easier said than done but it will help you get through these days that can seem really long, days when you just find yourself waiting as if in limbo for answers or for your treatment to start. We have some good tips to help you cope while having to deal with all this uncertainty. I hope that you get more clarity soon on what the next steps might be - we are all here for you anytime you need to talk to others in a similar boat.

    Best wishes, 

    Lucie, Cancer Chat Moderator