Unfortunately as Mod Jenn mentioned in her reply on your other post, there doesn't seem to be any active members within the community that are talking about this at the moment. The most recent discussions I could find when searching the forum were from over a year ago so there's a high possibility they may not be on the forum anymore.
I'm sorry I can't connect you with anyone at the moment, but if you give our team of cancer nurses a call they may be able to help. They're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.
I'm thinking of you Florida10474 and really do hope you're able to find others who have had a pelvic exenteration soon.
