Ok, I was swithering to post this or not, and a mod can remove it if it crosses a line.

Like yourself, my wife had 3 or 4 rounds of this after her EC treatment. This was around 2 years ago. The bad, after each and ever docetaxel, she landed in hospital. The doctors to this day still can't tell her why. She would get massive temperature spikes, and basically be on death's door each time. Without fail, this happened all the time and each treatment had to be administered with more time in between. Her last treatment was around a month apart because she was so ill on it. It began to affect her liver too, and this was also partially the reason the last dose was a month apart as to allow her liver to recover. They decided because she only had one more treatment left, they would do it, but lower the dose. They did. But she was still hit for 6 with it. We firmly believe had she had to have one more she wouldn't have done it, nor would the hospital allowed another one. Things were that bad.After her last treatment, she was hospitalised for around 2 weeks. Like i said, her temp always spiked so she had to be pumped with IV antibiotics just in case, but no infection was ever found. But belts and braces was the order of the day.

It's a nasty chemo, no 2 ways about it.

The good, it obliterated the cancer 100%. She obtained a full response. So much so, one of the oncologists broke down in tears because she couldn't believe the response. My wife's BC was quite extensive as far as stage 3 went. Her reoccurrence sat around 70%, then was downgraded to something ridiculous like 3% after that treatment. She was also down for a full mastectomy all the way through her treatment, but this too was downgraded to a lumpectomy. They had to reinsert to marker before surgery because they couldn't see anything on scans, and needed something for the op, for the surgeon to look for. No cancer cells were found after the surgery.

In a nutshell, an absolute horror of a drug, but a drug that gave my wife a second chance of life. The dark times were wroth it as she's still here 2 years later, and still cancer free. So think about stopping it very carefully. The hospital will cease treatment if they think you are at risk, so listen to them, then decide.  If you're anything like my wife, i can imagine how tough you're having it, and know how defeated you're probably feeling.

Thank you so much for your reply.

this is exactly what happened to me, I remember saying to my husband that I thought I was dying. It was the worst thing I’ve ever been through and I’m so scared to do it again.

My chemo is preventative, I’ve had my lumpectomy and lymph node removal and no cancer was detected to have spread or be left, I should’ve explained this in my first post. This is why I’m considering not having the last 2 and just carrying on with the Phesgo injection. I just need to know that I’m not putting myself at risk of it coming back by doing so.  

i will definitely speak to the consultant and take their advice, I’m just so terrified of ending up the same as last time.

I’m thrilled to hear that your wife is doing well and thank you again for your reply x