Cancer Research UK main site

Newly diagnosed with incurable Neuroendocrine Cancer

Kazfoz_123
Offline

Hi all,

I’ve just been newly diagnosed with neuroendocrine cancer-quite rare apparently! I have an atypical carcanoid tumour under my left lung. I had to have 2 surgeries as the tumour was blocking 3/4 of my trachea. Whilst having the 2nd surgery my left lung collapsed. I also have tumours in the upper lobe of my left lung and the lining of my left lung. I started with chemo tablets 2 weeks ago, and I’m just taking things a day at a time. 

  • Hello Kazfoz_123,

    Welcome to Cancer Chat.

    It is important after a diagnosis to take things a day at a time and to talk about your feelings along the way. You can speak to your medical team if you have any questions or concerns and talk to those close to you. On our website, there information and guidance on neuroendocrine tumours, which you can view at anytime and if you'd like to talk to our team of cancer nurses, you can on the freephone 0808 800 4040. Lines open 9 to 5 Monday to Friday.

    Let us know how you're getting on,

    Moderator Anastasia

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.