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MDS/AML TREATMENT OPTIONS

flyboy
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Have just been diagnosed border line AML after MDS for 3 years, I have been offered 3 choices . 1. No treatment apart from transfusions , 2. Azacitidine , and  3. Azacitidine/Venetoclax .  I have read most of the medical info I can find , but I would like to hear real peoples experiences on these drug regimes as I have no idea which way to go.

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  • Hi flyboy,

    Welcome to Cancer Chat. It sounds like you've done a lot of research so far on your potential options. Hopefully you have also had an opportunity to talk all this through with your doctor - or if you haven't, then try to do this in order to get as much information as possible to help inform your decision.

    You are also welcome to speak to one of our nurses if you'd like to, either by posting in the 'Ask the Nurses' section of this forum, or by calling 0808 800 4040 - Monday-Friday, 9-5.

    Otherwise, if others here have similar experience to share then hopefully you'll get some more replies to your post soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

Reply

  • Hi flyboy,

    Welcome to Cancer Chat. It sounds like you've done a lot of research so far on your potential options. Hopefully you have also had an opportunity to talk all this through with your doctor - or if you haven't, then try to do this in order to get as much information as possible to help inform your decision.

    You are also welcome to speak to one of our nurses if you'd like to, either by posting in the 'Ask the Nurses' section of this forum, or by calling 0808 800 4040 - Monday-Friday, 9-5.

    Otherwise, if others here have similar experience to share then hopefully you'll get some more replies to your post soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

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