CUP - Cancer of Unknown Primary

Cancer of unknown primary!! I understand what it is but how come things are not moving faster with appointments and doctors just keep saying we don’t know. I want every scan there is and treatment, no treatment as yet.

Doctors was taking about this in April and still taking, I am trying for a second opinion but even that is taking time.

  • Hello Grace-CUP, 

    I am so sorry to hear that things are not moving fast enough and you haven't been offered treatment yet for cancer of unknown primary. It must be hugely frustrating for you and I think you did the right thing in getting a second opinion and I hope that you won't have to wait too long to speak to someone. 

    I hope that you will hear from others on our forum who have been diagnosed with cancer of unknown primary and that they will be along shortly to share their experience with you. 

    You may also find it beneficial to talk to one of our cancer nurses about this - they are available on this free number 0808 800 4040 Monday to Friday from 9am to 5pm so don't hesitate to give them a call if you would like to talk things through with them. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi Grace, 

    have you had any answers, treatment etc. my husband has secondary bone cancer from unknown primary and I totally understand what your saying. Feeling like nothing is happening and waiting for results etc