Hello I'm Stacey

FIRSTLY apologies this is long and if you make it to the end THANK YOU  :-)

Hello ,I'm 38 with 2 children youngest being 10 and very much mummy girl, I found a lump on my right shoulder/neck kinda where your bra strap sits (for thos who wear a bra :-) 

No pain or discomfort I happened to itch my shoulder and found it that way so no idea how long it's been there I would say it feels little bruised or tender next day if I've been prodding it about but nothing major  ...

So I finally got into the docs (limited as work all week apart from Mon),doc had feel and wanted me to have ultra  scan at hosp .

Week later I had my scan (last weds) but I'm no wiser to what is happening but naturally I'm thinking the worse! And I mean my brain isn't letting me think other wise ,

So in the scan there was 3 staff, believe 1 was a student the lady doing the scan  asked me to lay down and all I heard was "ok so this is a lymph node " and with that we will then check them all ,so she checked around my neck,shoulders,throat, ears , im already thinking OMG what isit i tried to ask questions but was told have wait till end. 

Was then told I need to go next door with her colleague for another scan as its slight on the shoulder guess her machine was for soft tissue only ?

So after long 20min wait which felt soooo long I was so nervous feeling sick u name it already thinking worse again ! I went in and basically was asked "any sharp pains " replied no nothing I was asked this few times,  I was asked anymore lumps ? I said not that I'm aware off ...this point I'm getting upset as I'm like what isit what's happening?? Sadly they told me they can't tell me as they don't know and that I'll need a MRI I said why??? Surley you must know something I'm extremely upset this point and lady was lovely and comforted me but she just said we don't know its "complex" I have no idea what this means but its confirms to me its not a cyst or a fatty lump and this is where my mind takes over that it only leaves 1 other thing!!! 

Later on I had call from my doctor to confirm he will be referring me for MRI that can take upto 2weeks or longer evan though his gonna push it through the fastest way possible,  and he then just said that they found something they wasn't happy about and said that no matter how skilled or trained they are not evan he could tell from a ultra sound what it is( I feel this is just a cope out as surley they must know if they can tell cyst or fatty lump from a scan there and then) he also said which makes me feel like it's his way off saying its the big c but without saying it...he said that a cyst or fatty lump(don't remember medical term) don't need vessels to live on ?? Im sure that what he said (I was very upset ) and that mine has it like vessels or something attached?? And said that there is 2 procedures first MRI then biopsy to see if its B or C ,I just feel like they maybe do know but wants to be sure my mind won't shut off from thinking its C and has it spread is that why they want MRI instead just doing biopsy? Please cab anyone help with questions what else could it be then if fatty lump or cyst us ruled out because this vessel ?could it still be anything other then the dreaded one ? 

  • Hi Stacey

    There is something called a hemangioma, which is a benign tumour which is a cluster of blood vessels, these can sometimes occur on the skin which look like a large raised birthmark, but they can also occur under the skin and also on internal organs.  So please do not think just because blood vessels have been seen on your ultrasound, that it is certain that you have cancer, it could still be a benign cause.

    The doctors do however take it seriously and rush through scans etc, which of course is very scary, and easy to get swept along to thinking the worst.  But we need to be glad that they are doing things so quickly, at least if it is cancer, it gets diagnosed and treated asap.

    I am also in this limbo land at present. I had an ultrasound of my liver at end of May due to a slightly high liver enzyme reading, I asked the person if they had found anything, she said that they had found 'a small something' on my liver, and that she would send my results to the doctor, but to chase him, if I had not heard anything within a week.  Within 4 days, I had a call from my gp to go in that day to see him.  The 'small something' turned out to be a 10cm x 6cm lesion on my liver, I was sent for urgent ct scan within 3 days and have just had an urgent mri scan, as they cannot tell if its cancerous or not.  Yes sometimes my mind thinks the worst, but I keep telling myself that there is still a greater chance of it being benign than cancer, so I have to keep positive!

    I really hope that you get the answers that you need soon.

    Best wishes

    Annie

  • Annie 

    Thank you ! For coming back to me with the small hope or chance there is actually something out there other then cancer as I had no idea I've stopped googling stuff as we all know where that can go ,from what I aware of my lump is lynth node as I heard the lady say to her colleague "ok so that lynth node " and I think my other lynth nodes was ok I think ! I'm sorry to hear that you also have no answers yet it's awful the wait isn't it but since I've been on here I've actually got bit of appetite back so it's really helping me so thank you all for taking the time :-) love your postive vibes ! Hope your Sunday has been a good one x

  • I am glad that you are managing to eat something, it important for us to keep our strength up.  Unfortunately, we may both end up having to have biopsies, which means another wait for answers.  But all we can do is keep plodding on the treadmill that we are on, until we get to the end.  Also, the mri is for them to be able to see the structure of the lump better than a ct scan can, so please dont think that they are sending you for that to see if it has spread.

    I was initially worried that my lesion could be secondary cancer from somewhere else (I am at higher risk of breast cancer), but consultant reassured me after ct scan that they have not seen anything else of concern.

    So I am telling myself that it will hopefully come back as benign, then I can relax as I will have had one hell of a health mot with all the scans that I have had!

    xx

  • Yes thats sooo true we must keep up our strength evan when my appetite has gone I've been just having bowl porridge or shake or soup just something to keep my engine running lol , yeah this is very true we might both end up having a biopsy....

    I think because my lump/lynth node is on my shoulder it worried me as a possible secondary cancer as when I did go Google mad that come up alot ...and with them asking for MRI my brain kinda went Into one and then you question every part your body and symptoms actually brought on my own stress symptoms of headaches ,body aches etc then thinking its symptoms of C its actually a viscous circle...BUT this weekend has definitely been more postive for me just kept my brain busy had famliy over and the children keep you busy ,and yes that's brilliant way thinking :-) xx

  • Hi Stacey

    I have just seen you say on another thread that you are worried about your mri? I was scared stiff about mine, but when I got there it was a real hi-tech bit of kit that you felt like you were looking through a big window up to the ceiling and they had a screen show playing on the ceiling of fish and dolphins and turtles (it was actually an illusion done with mirrors).  At no time did I feel like I was actually confined, yes I got a bit tense on a couple of occasions, but I just concentrated on what I was watching.  The worst bit was hearing all of the clanking and banging, even with ear defenders on it was very loud!

    I hope that you get a machine like I had, but if not, I was just planning on keeping my eyes tightly shut through the whole thing!

    xx

  • Ahhh so u had the head to toe one ???Yeah I struggle big time with small spaces , I also thought I'd be going in eyes shut tightly do they give u ur results same day ??xx 

  • Not head to toe, it was chest to pelvis, so I was well and truly in there!  If you tell them how nervous you are, they may be able to give you something to relax you a bit.

    No results on the day, I had an appointment with the consultant the day before my mri, she said that she should hopefully get the results middle of next week and she will ring me to give me some idea of what the next steps will be.  I am expecting that the results will need to go to the MDT meeting on Friday and they will decide what happens next.  There are thoughts that even if its benign, they may need to operate as it is so big it is in danger of obstructing the blood flow to my liver, if it grows further.  Trying not to think about that too much, hoping that it will just be a 'watch and wait' with regular mri scans to monitor it..........

    xx

  • Hi Mumaof2 how are you doing?  I hope you're managing to keep your anxiety to a minimum. The waiting for scans xrays appointments is the worst.  I totally understand your anxiety I'm so scared and just want to know what's wrong with me and praying it's not what I'm dreading it is.  Have a good day I'm thinking of you.

  • I hope it all goes ok and you don't have wait to long keep me updated im thinking you , hows your day so far? I've not heard anything yet on my MRI appointment just longgggg waiting game trying to be normal 'trying' 

  • Hiiiii ,im ok im at work today which I really finds helps me keep my mind distracted don't get me wrong I still think about it on and off all day but alot less then if I was at home on my own .

    I've still not heard anything yet on MRI scan appointment but it will only be week tomorrow since I had my ultrasound so guess its gonna be while yet...

    Hope your OK??? How are you ? How's your Tuesday so far im here if you ever need vent/chat :'-)