I had a fastrack referral that during investigation found a lung nodule in my right upper lobe.  A subsequent PET CT scan found it was active.  Unfortunately it is felt to be extremely difficult to biopsy given the location.  At the moment it scores about 60% on the Herder risk calculator.  I have also had significant unintentional weight loss.  The current treatment plan is for a wedge lung resection to remove the lesion and surrounding tissue and test intraoperatively.  If it's not malignant then they will stop at the wedge resection.  If it is malignant then they will remove the affected lung lobe and sample the nearby nodes.

Earlier this week I had a CT scan, I don't know the results but I understood if it showed any shrinkage then the surgery plans would be put on hold.  I know my surgeon joins the MDT respiratory discussions every Friday at my hospital and this Friday afternoon his secretary phoned me and seemed to suggest my procedure was going to be moved forward by a week to the 19th as opposed to the 25th. 

Things have moved quickly during this time but apart from the initial consultation with the respiratory consultant and then the last discussion with the surgeon it seems very difficult to talk to anybody about what is actually happening.  I have tried phoning the lung specialist nurses to clarify what is happening and why dates are changing unfortunately these things seem to happen on a Friday when it is impossible to get a response until the following week. 

I am very worried that they seem to want to change the date, although I am constantly thinking about my circumstances I was also grateful that I had time before the procedure.  It feels like the rug has been pulled from under me.  It doesn't feel very joined up at the moment.  It might sound ungrateful but I feel like I might just say no.  I know I am a small cog in the NHS machine but I want to be consulted properly when my treatment plan seems to change.  Frankly I am quietly terrified at the moment.