Mum of 2 teenage girls sharing my breast cancer experience

As a mum of 2 teenage girls whose dad abandoned us because he couldn’t deal with my illness, 

I was an independent mum, fit. Then I was tired, couldn’t get out of bed. I have had to fight every step. I am now 45. My Nan died of cancer, my aunt died of cancer, my cousin has cancer. I had cin 3 at 22. I had a melanoma skin cancer removed at 22 only because a school friend died. I would have died of cervical cancer if I had been born years later. 

I suffered from hormonal cancer. I felt my lump after my aunt died. The breast cancer unit couldn’t feel my lump. But a mammogram confirmed it. It grew down. It was aggressive. 

despite my objections the surgeon refused to do a full mastectomy.

it had spread to 1/3 of lymph nodes. 
uterus is thickening. 
nerve pain excessive 

bone and nerve pain were unbearable. Constantly went back to consultant and GP. 

breast consultant told me I needed to lose weight and I was imagining the lumps he couldn’t feel anything. But then neither could the original doctor. 

GP just gave me more painkillers. ended up getting emergency surgery on spine. 

consultant neurosurgeon at a London hospital operated on me as an emergency. I had cauda equina syndrome. Very rare. 

There is a serious lack of care for middle age mums! 

I had to fight to get hospital transport as they told me I was too young. 

at 45 I am still made to feel like a burden. My breast consultant only sent me for MRI to pacify me. I could have lost the use of my legs! 

my cancer grew 2cm in 2 weeks. I thought I was going mad

I have a lump a hard lump I can feel. In both breasts. But only when your sat a certain way. 

haven’t even had my yearly mammogram. 

I have the MTHFR gene mutation. I asked for a full mastectomy. I was denied. 
in the last year out of 32 houses, a 40 year old man died of cancer, a 50 year old woman died of cancer, a 48 year old has terminal cancer, I had breast cancer. 

I am a single mum. I have a history of cancer. I only survived breast cancer because I am in tune with my body. 

The NHS, refused to acknowledge my family history, my wishes, 

has caused me pain and suffering. And insulted me. Has blamed me. 

I am only alive today because of my oncologist. 
my breast surgeon has made me feel so worthless that I can’t bare to contact the breast clinic again. 

yet I have these hard lumps

  • Hi Emmalar, 

    Thank you very much for coming here and sharing your breast cancer journey with us. Poor you, you've been through a lot and I am so sorry that you didn't always have a great experience and felt very much let down at times. I am glad you had a good oncologist though and that you are still here today to share your breast cancer story with us. I hope that many members of our community who have been similarly affected by breast cancer will be moved by your post and will be along shortly to share their experience with you. 

    I know you mentioned your breast surgeon made you feel worthless and I am so sorry that this was the case but if you have noticed any new lumps or anything you are concerned about, it would be a good idea to get in touch with the breast clinic or talk to your GP in the first instance. It's important to get any change you've noticed investigated and looked at. You won't necessarily need to ever see that surgeon again but it's important to get these hard lumps checked just for peace of mind. 

    Keeping everything crossed for you that these lumps turn out to be nothing of concern and that you can get to speak to a doctor soon about these.

    Best wishes, 

    Lucie, Cancer Chat Moderator