Rlfn - treatment for endometrium cancer

I've just finished vault brachytherapy the radiologist tried to introduce me to dialators I did make it very clear I had no intentions of using such a thing on myself and that i felt that I had been through enough I'm absolutely livid that I was more or less made to take these dialators home with me I'm furious the dialators are now in the bucket this was never discussed with me when I first met the oncologist infact there was a couple of things i wasnt told about this brachytherapy i should have been informed about . I know the reasons for using the dialators but I've also read there's no actual scientific evidence that dialators do what there supposed to do either. This is the first time I've actually cried since I was informed that I had endrometrium cancer I was very distressed and still am distressed at being made to take dialators so that hospitals can tick a box and there job is done . I'm very very angry at having to take dialators home to put them in the bucket more expense down the drain. If a patient doesn't want the dialators accept there decision . Hasn't the patient been through enough. To expect female patients to do this several weeks after vault brachytherapy is unacceptable I can understand if it was discussed at the patients follow up but to discuss it right after treatment has been completed it's not acceptable and I feel it's far to soon to think a patient should just accept this and go along with what is being advised . When I get told something I need time to digest information and time to look up my options and time to make my own decisions but a couple of times this has not happened and I've become extremely angry. My whole experience has not been great I don't like professionals making my decisions for me I prefer to do that myself yes I know there trying to help me but give me time to digest what you've said to me and let me make the decision that's right for not for you the professional.

  • Hello Rlfn

    I'm so very sorry to hear not only about your diagnosis but about the overall experience that you've had with your treatment. I can tell from your post that this has been a very difficult time for you and it's understandable that you're feeling angry and frustrated. 

    If you feel that you want to give feedback to the hospital team regarding your experiences and treatment then I'd recommend contacting the hospital PALS team. Part of their role is to help resolve concerns or problems when you're using the NHS as well as to help improve the service. 

    I don't know if you have a specialist nurse that you've had any contact with Rlfn. If you do and you feel able to contact them, then it's certainly worth discussing your concerns about using dilators with them. Alternatively, if you'd like to talk with one of our nurses you are most welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice, information, and support they can. 

    I do hope Rfln that your recovery progresses smoothly and that you're able to find the support you deserve to help you move forward. Keep in touch here at the Cancer Chat forum if it helps to have a safe space to write down how you're feeling. We're here to listen and offer any help and support we can. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thanks for responding I have contacted NHS regards to my treatment . I've mentioned all that has affected me in not receiving the right information at a time that I needed it . Wednesday the 22/5/2024 was supposed to be a happy day for me I had completed my brachytherapy but I'm now feeling violated in relation to these dialators I'm deeply religious I had no idea what they were this was never discussed with me  before brachytherapy treatment started when I saw the word dialators I had to look it up and find out myself what it was I made my decision not to use them but I was pressurised into taking this item home with me I  put them in the  bucket . My anger is great and very very deep that I've not been informed every step of the way as to what would happen and what will take place with me on a personal and private basis. I'm now waiting on my GP calling me back as I need more help mentally I was fine until they brought out these disgusting dialators I made it very clear that I would not use such a device on myself but they didn't want to hear. What happened to patient choices ( mine we're completely ignored). Thankyou.