Hello Sarah100, and first of all may I say how sorry I am for what you and your family are going through.  It does seem very strange that your Mother's notes state that she has endometrial cancer and yet she has had a hysterectomy.  I think that the only thing you can do is to ask  your Mum's medical team exactly what is going on.  Good luck, xx

Morning,  Blue-girl -  just  a  quick  note  to  say  thank  you very  much  for your  lovely  supportive  reply: it  is  indeed  a  mystery,  isn't  it!!!! I  do  hope  I  haven't  frightened  other  ladies diagnosed  with  EC:  a  hysterectomy  is  the  usual  treatment  for  it  and highly  successful,  so I hope  these  words  may  be  of  comfort  to others.  My  point  was  that she  couldn't  have  had a  hysto,  7  years  ago -  basically,  she  is  lying -  which is  a horrible  thing  to say  about  my  own  mother,  but  then  again,  I blame  it  on  her  dementia.  She'd  disown  me  if  I  ever  approached  her  medical  team,   and  she  didn't  want  me  to visit:  she  knows I know!!!!   Anyway,  thanks  once  again  for  your  reply,  Blue-girl.   If  I can be  of  any  support  to  you, please  feel  free  to  contact  me.  Otherwise,  I wish you  all the  very  best  of  luck  and   same  applies  to  anyone  else  reading  this  thread.   Thanks  again :)

Well,  today  was  my  91  year  old  mum's - I've  found  out  what  its  called  by  reseraching on here,brancaherapy.   A week  after  her  first.   Called  my  96  year  old  dad,  only to  be  told  I 'interfere',  am not  a  good  daughter,  when  I do  everything  they let  me  do for them. Hurt feelings -  apparently  NHS  transport  was late,  but nothing to  do with me.....   Yes,  aas per  my previous post:  having  spoken  to Mcmillan, and  also  a lovely nurse on here,  it  really  is impossible  to have  Endometrial Cancer  if, for   example  my mother  had a  radical  hysto 7  years  ago.  I asked  her specifically, when  I did sit  by her, in  recovery  and then moved to overnight  ward,   a  week  ago,  what  sort of  hysto  she'd  had.  I specially  asked  about  ovaries,  Fall  tubes, pelvic  glands, the  truth  is,  she  did NOT  have  a  hysto  at  all 7  years  ago. 

I have  spent this morning, trying  to  find out  what op  she  did  have then...... all  lovely  people,  but   not allowed to tell  me,  as  I expected, and  quite  rightly  so.   I'm sorry to  be  venting  my feelings,  but  why has  she lied,  not  to me, but  my dad, other  family members?    Thing  is   she   knows  I know - as  soon  as  I caught a  glimpse  of her discharge papers  Endometrial  Cancer ( palliative) at  her  bedside last week.  I have  phoned  every  day,  checking her  urine  output ( I personally think it's bladder  cancer)  but  now  told  I am  a  terrible  daughter, not  to come  up,  I interfere,  and my  dad who  adores her,  told  me  I am  no  longer  welcome  to  visit.  Thank  the Lord,  I have strong  mental  health -  but  sadly  my mother knew  I knew  she'd lied again about  her op 7  years  ago.   

By  the  way,  I   do not  want  to worry  any  younger  ladies: there  are  different  levels of  cancer/grades  and  also  type  of   hysterectomies.... surgeons  usually  like  to keep your  ovaries  and  Fall  tubes  as  younger  women, and  highly  successful.   I am  very sorry  if  I have  frightened  anyone  ...... this    thread is more about  end of life,   and  not  being  able  to  find out why  my 91  year  old mother  has lied  to the  whole  family. 

Yes, I have  a  vested interest:  there is  something  called  Lynche  Syndrome:  from  what  I understand  just  genetically inherited.   I  say 'just',  but  it  is a  real  thing!    I am  a  cancer  survivor, immuno -compromised, as  it  is,   undergoing  tests for    a  secondary..............   I think my cancer has  reached  to bladder and  breasts too.  Lynche  is   very  rare, but  my  hours  of  research  says, and  I am not  medically  trained,  just giving  my thoughts,   but  a  simple  marker  on my mum's  next  blood  test  would  show it. Usually passed  down  by  maternal,  but  can be passed  paternally  as  well, so it  seems.  She  won't  even talk to me  and via  my dad told  me to keep away.

Hope  this has been  informative and  helpful. thank you.

Hiya Sarah100.  I am really sorry for what you are going through.......it seems that just because you wanted to know the truth about your Mum's condition, you have been made a scapegoat, which is of course very unfair.  I am sorry that your Mum is refusing to see you.  I think that a crisis tends to bring out the best and the worst in people.  I took care of my Mum when she had terminal cancer, and one evening when I went to visit her in hospital, she said something so hurtful to me that even now, almost 30 years later, it  brings tears to my eyes when I think about it.  I now have terminal cancer myself, and I have made a determined effort to treat my family with kindness, because I don't want to leave this world with the knowledge that I hurt anyones feelings while I was here.  It seems that you have done the best you can, and hopefully your Mum will relent and ask to see you before she leaves this life.  I wish you all the best, take care, xx  

Dear  Blue-girl.   What  can  I say, other  than  being  humbled.   Thank  you   for your ongoing  support  when you  are suffering  yourself.  I  have  no  idea  how  to  answer  you  privately, but  I  should  imagine  that  this  is  a public forum,  so  what  you said is  for all to  see.  Took  me  ages  to find out  how  to  reply - bit of a  technophobe  here, per  se,  and  been crying  all day, so  a  tad  emotional. and  not  functioning  very  well,  no  sleep,  food,  just  so  upset  today.  My  dad, 96,  has told  me  to  stay  away  this morning.  Don't  come  up,  he  said,   and apparently  I am  to blame for  an admin  mess up   re  her  NHS  travel who  came this morning, let  alone being called  names by him.  Truth  hurts, so it  is  said. But  there is  no truth in any of  this.

    I am a  devout  Christian   and found your  words  very  comforting,  Blue-Girl,  as  I am  sure others will  do.   I have  nothing  but  compassion for  your terminal status,  and  if  you will  allow, will add  you  to my long  list  of those who  will be passing.  You  sound accepting of  your diagnosis, and I hope  you  do have  the love  and  support of your family and  friends.  I  do  not  engage  in  confrontation, am   just  a peaceful lady,  most people  like  me, have  tons  of  friends,  but  family,  been told  to  stay away, even  by  my dad. I was  never  able  to have  children,  due to  life long  endometriosis, 7  ops,  under  the  IVF  in  its  infancy  under  Mr  Steptoe.  I was of   the  Louis Brown  era.   First  IVF  baby,  who  later  went on to have  children.  It's  a  magical  world, the  cancer  scientists  have  found  so  many  different  treatments,   and  cancer effects us  all,  either  having it, or  knowing  someone  living  with  it........  Anyway,  this note  is  not  about  me, or  my  (admittedly) feeling  sorry  for myself that  both  my parents  have   rejected  me  now,  even though  I don't even know  what  I have done  wrong.

I  got  a  horrid  text  from  my older  sister:  blaming  me,  and to stay  away.   Found  out  today  that she  has  POA over  both  of  them.   I  do  not  know  why  I have been  cast  aside,  when it  really is  a  Bible  story of  the Prodigal  Son.  She  does  nothing  for them,  never  visits, I do/did  everything.  She pretends  she  doesn;t  know  my  address,  even though been here  for  18  years.... lies.... cheated on all  her  husbands....   I know all this, I can prove  it, but  hey  ho.... nasty  text  from her.  I  can't  even  open  it,  just  read  the  first  sentence,  that  was  enough.    

I  like  to  end  my   posts  with practical  advice:  there  are two  types  of  POA:  financial  and  welfare.  Most  siblings  share both  equally,  just  to put  some legal  stuff  out  therem  but  to put  their  care into  her  hands......  she  doesnt  even   visit......but  that's  my parents' choice.  It's  not  nice being the one who  loves the  most, does  everything, my  sister  does  nothing, but  lie.  Dad  said,  'because  she;s  the  eldest..........  Hmmm.

  But  hey  ho.  I  retain a  sense  of  humour, since  money means nothing  to me.  Life  does.   They all know  about  my  cancer  battle,  but  I am the  blacksheep.  There is  never  any  smoke  without  fire:  sadly  my sister has  created  the  smoke.  My  advice out  there, or  rather  suggestion, is  anyone  reading  this,  try to  bury the  hatchet with  any  siblings.  I have  tried,  failed, but  what  can you do with your parent's  favourite,  who  has lied  her  way through  husbands, and not  really  a  surprise,  now  has  both POA's  over   my parents.  

Back  to  you,  Blue-Girl.  how  kind  it  is to  reply to me when   I  was  in the  depths  of  depression,   I found  this  site  and you  replied.    Bet  you're  not  feeling  that  chipper  yourself.... bless  you.  I  won't  ask what grade you  are or  where, but  you   are  very  accepting of your  terminal  status.    I find  that  humbling -  cancer  survivor  here,  but think I have  Bladder.  Sorting  out  my own  will, and  no children -  my sister  is  my next  of kin.  Oh  dear..... Any  legal eagles out  there? Did  my Will  over  Covid time,  but now I know  I have  secondaries, not long to sort this out.   Probate,  hmmm.  Guardianship?  I  just  want  all my  estate to   go to  British Heart and  CR.   Sister  next  of  kin.    I  can not  the only  childless,  unmarried  lady on here,  who   is  estranged  from  sister......    there is  some sort of  status,  Will,  made to exclude  next  of  kin who  would  contest  a Will.  I'm  not  worth  much,  monetary,  but a  stands, whilst mum and dad  still alive,  next  of  kin.  MY sister  aalready  knows,  leaving her  two   adult sons  money.  Now, no.  so  any  legal  people  out  there,  please  say........ the  Govt has  some  sort  of  scheme for us  childless,  unmarried,  but  name  of  it  escapes me.

BLUE-GIRL 

if you  want to talk to  a  kind  stranger, I am here.  You  and I  both been  around  cancer a  long time,  since you nursed your own mum..... I nursed  my  aunty.....also  about 30 years  ago.  Try  not  to  cry when  you  remember  some horrid  thing she  said  to you,  Blue-Girl.   Drugs  cause  all  sorts  of  effects,  and  I am  sure  deep  down  she  didn't  mean it. Just  words.  I love  that  song  by  the  Bee  Gees....   I hope your  daily  life is  filled with some joy, and  being on  here,  certainly has  helped  me.  You're  a  giver:  so  am  I.  Listen  to  music   poignant  to you.  I KNOW  it  hurts -  I've had  it  double  whammy, triple  whammy today,  with my sister, bouyed  with her  enforced  POA,  has  left  me  a text  asking  me  not  to upset  my  dad. 

 I'm going  to  cook  my dinner  now,  something  unhealthy,  since  hey ho,  why not when dying?     I am too.   Be  too late    for me still   waiting  for  tests  and  can't  afford private,  ,  and  fed up  with  ops  anyway.   I  am rady  to  go to my  God.    So  easy  to cook  a  bit of  steak  and  chips -  . and ice  cream,  lines  the  tummy. and also  yummy!   Ha  ha, that  rhymes.  Blue- Girl,  what a  lovely lady  you are, to literally pick  me  up,  help  my  depressed  mood,  and I thank you.  I only  wish  I  could help you in  some  way.   Always  about,  if you  ever  need  a  virtual  stranger  to chat to.  Thank you,  sweetheart.  Oh, not  allowed  to  use  terms  of  endearment anymore....  this  woke  melarky....  okey  dokey,  night  night.  Going  to call my  dad  again to  check  he is  alright  and not  forgotten  his  tablets.   I won;t  mntion my sistere  two nasty  texts.  OK,  nighty night.

To  all suffering..... I  am not a  medic,but know  A LOT about  endometriosis.  That  condition  is not  the  same  as  endometirial  cancer.  This  thread is  about  EC  and end  of  life care.  I was  a  campaigner in the 80's.   A certain  newspaper reported it was a  sexually  transmitted  disease.  Got  a  retraction,  now,  a  registered  disabilitiy  after  some  40 years or  so.  Those  who  have  read my story on here so far,   suggest  you  have  a look  at  the  Endometriosis  Society.  I have no vested  interest - too late  for me now,  but  anyway,  just a  top tip!   BLUE-GIRL,  nighty night.   I'm  ok, vented  my  upset in a public  forum,  I  hope you  email me  again, if  I can  help  in  any small  way at all.  OK, off to phone  my  dad  again, even though, my sister has  warned me to  not do so.....ha, ha....  night!

Dear  all, apologies -  only  just  realised  that  there  is  already  a  thread  on  EC:  am a  bit of an  idiot  when it  comes  to the  internet!   Anyway,  my stay  on here  has  come  to  an  end  now, after  just  a  week  or  so.  You've  all been  very  kind and  helpful,  especially  Blue-girl,  but  need  some  time off now.  No  doubt  I  will  re-emerge  back on here   some  time,   after all my battery  of  tests for  secondaries.   I have   been  emotional  regarding  my  mother, perhaps  too  much so,  apologies.  Blue-girl:     all  the  very  very  best with your  journey.   I  would  like  to  delete  this  account this  morning,  but  won't  do  so  until you reply:  would  hate  you to  think  I had  just  been and  gone and  insincere in  my best  wishes  for  you.  Ok then,  everyone,   all  the  very  best  to all  of you regarding  EC.  Bye  for  now.  May  catch you on  bladder  and  breast  cancer  pages....  cheerio   and  big  virtual  hugs to  everyone  :)

Hiya Sarah100.  Wow........families eh?  Sorry to hear that your sister has basically cut you out of the family.........what is wrong with people?  Doesn't your sister realise that it is times like this when families NEED each other the most?  The main things is Sarah, you know that you have done nothing to be ashamed of, and you can look at yourself in the mirror and know that you have conducted yourself with honour and integrity.  As for me, I have a wonderful partner who helps to keep my spirits up when I am feeling very low.  He is also very ill (though not with cancer) and sometimes we make jokes about which one of us is going to fall off our perch first.  It probably seems like very dark humour, but that is how we face life.  I am a Christian and my faith is what has helped me through some really rough times in my life.  I absolutely believe that when my time comes, I will be returning home to God.  I too am going to take a break from the forum, but as you say, we might well run across each other again one day somewhere on here.  Perhaps we will meet in Heaven?  That would be nice.  Like you Sarah, I never had any children, but that was from choice.  However, I do sometimes have regrets and think that maybe I should have had a child.......I think I would have been a good Mum.  My partner says that I would have been the best Mum in the world!  Sarah, I am very glad that you are going to phone your Dad.  You have every right to be in your parents lives, and your sister is very wrong to try to deny you this right.  Also, thank you so much for your very kind words regarding what my mum said to me when she was dying......you are of course absolutely right......she was on heavy doses of morphine by that stage and obviously didn't know what she was saying.  Anyway mate, I wish you well on this journey that none of us ever signed up for, and I am so glad that I was able to help you in some small way.........good luck to you, and I truly hope that you will be re-united with your mum and dad, and hopefully your sister too (if she is able to see how wrong she is).  Take care Sarah, and once again, THANK YOU for your very kind words, I appreciate it from the depths of my heart, xxx