Cholangiocarcinoma

Hi.

My GP sent me off for a CT scan, then a consultant sent me for an MRI then a PET.

This all started when I spoke to GP because I felt a  bit off colour, nauseous and had a pain under my right breast.

Anyway, they diagnosed a cholangiocarcinoma and it was successfully removed with negative lymph node biopsy in Feb.

I've not asked if it could come back but I think they would have told me if so.

I'm now on 2nd cycle of Capecitabine tablets for 6 months.

So far I just feel tired and have to push myself away from doing jigsaws and watching rubbish TV. But I'm out and about outdoors and using my bicycle,  avoiding crowded places and stuffy cafes but hope weather stays sunny .

The hospital are very matter of fact and tell me side effects can accumulate and I might feel poorly later on.

Any similar experience? 

  • Hello JAylett,

    Welcome to Cancer Chat.

    It's nice to hear you've been getting out and about during your treatment. The weather has been so lovely so I hope we can continue to make the most of it. Side affects can occur at different times so do to keep your doctor informed so they can better monitor what's going on. Don't be afraid to ask questions as it's important that you feel informed and that as much as possible is clear to you when you leave appointments. You can read more about Capecitabine and its side effects on our website, which I hope is useful to you.

    Best wishes,

    Moderator Anastasia